Off to Southampton to see my neuro surgeon to see what hes going to do. On the shunt setting 2 the pressures built up, terrible pain until finally i had a brain bleed and was hospitalised in December. They changed the setting to 1.5 and now i have low pressure problems, unable to stand more than a couple of minutes, balance problems, falls, low pressure headaches. Tried caffeine, lots of rest but nothing works. So a conundrum. Theyve had a meeting and im going today to find out what if anything they can do. Its not till 3.30 but will let you all know.
Hope you are all well and the cold weather isnt a problem for you. Xxx
Worried about appointment.
Long distance social worker appointment?
Doctor appointment 
ESA appointment
