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Feel let down by your physio

What got me through my bleed on my brain was my determination that I was going to walk.my physios said I didn’t need them anymore because I could walk with a stick in a fashion not very good but I’m determined to walk like normal.it feels like they’ve deserted me. I walk without my stick inside but I know I need prompting on certain things

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where was this physio? ie hospital i'm assuming yes?

I never had any in hospital since I don't need a stick, it was only much later with falls that I had some physio in a local hospital for people with Nerological conditions.

In other words if you feel you would benefit from some more? it may be worth getting yourself referred or possibly self referred.

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I’ve tried to tell the I could do with seeing them again but they just keep saying I can walk. I think it’s because tretched and there’s probably people more in need but I just want to walk normal like everyone and always aim for perfection and they say to me I should be happy with what I’ve achieved but it’s not enough for me.they said with the size of my bleed I’d not walk at all in hospital one of the doctors said to me to speak to someone on the spignalunitto which I said F off with that negative attitude. I’m walking in the house without a stick because I won’t settle for second best. If you don’t aim for the stars you don’t know how far you’ll reach

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I’m assuming this is the hospital physio? You’d probably not get get access back to them, but better avenue would be the Community Neuro Rehabilitation team, in your area.

That is what I had, I could walk, but I was having the odd fall/trip/emergency sit down, the point the Nero Physio made the point that it’s not the capacity as such but the drop in it.

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I had very little physio after my bleed it was as though they'd decided it wasn't worth it but after an op for drop foot which allowed me to put weight through both feet I could stand up and take a few steps. I have been offered little physio even though they was the chance of a positive outcome. The result was we took on a private physio which has proved to be very successful but it makes me so mad that not everyone could do this. Also my NHS physio has said she cannot get involved in helping me to practice, which is my biggest problem, as she would then be overlapping with the private one! What rubbish! I just want to be able to walk around in my house, I'm not expecting miracles, but the more I can do for myself surely the better!

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To be honest, no medical professionals will see someone who is having treatment elsewhere for the same issue. There are good reasons for this, frustrating as it is.

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There is only so much physio does. I had few week physio in hospital got me back walking unaided then that was it. I was ok with that but my mum noticed I was walking flat footed like stomping about which I do notice in other people but not myself. Been back to physio and was told there’s nothing they can do. It was probably lucky I was able to walk unaided so quick or they would have probably left me with walking frame which I probably would have had to get myself off that. I actually wasn’t in rush to get rid of frame as I was just glad to be able to walk again tho probably would have tried without it eventually.

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I have had excellent physiotherapist . She is a neurologist/ phycologist. So deals with patients who have mobility problems though tbi. Patty Shelley is her name based in Nottingham. I have been going for 20 ish years daily at first reduced now to 3 weeks a year. I walk around my home unaided using just furniture as support. When out I use an electric wheelchair or walking stick depending where I am. So I can say I appricate my physiotherapy.

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