Hi everyone, only posted once before as never really get the chance but love coming on hear every now and then to read posts to know me and my family are not alone and going through this on our own.
A year has passed now since my dads cardiac arrest which has left him brain injured and oh what a tough roller coaster it has been.
My dad has just turned 60 and has always been a very hard working man who simply can't keep still and he is no different now even tho he can't work anymore(which he doesn't realise as he has his own business but his brother now runs it) . He needs 24hr care and it's so hard some days as we have to follow him everywhere, some nights he only sleeps couple of hours as he constantly gets his time mixed up and thinks he needs to be at work and this can continue right throughout the night.
Sometimes he can be aggressive, then half hour later he has completely forgotten and is a different man and is all smiles. He loves his food and we have a constant battle trying to make him not overeat as the minute he has eaten, he's forgotten and wants to eat more.
When he's crossing the road we have to follow him right by his side as he can't judge the distance the cars are coming( which he also doesn't realise) , and constantly tries to rewash everywhere in shower as he can't remember what he has done.
As his daughter, I absolutely love him , and enjoy helping my mum being his carer but some days it's so bloody hard, and is so mentally draining. My dad has always been the best father ever, and the most amazing grandad but now has no time for his grandkids most days, and that's the biggest shame for him and the grandkids as he used to love them so much.
Obviously we are so lucky to have him, but god it's hard somedays, and he now doesn't realise when he's saying something nasty and can say the nastiest things, then half hour later he's forgotten and he's telling you he loves you.
In some ways over time he has improved as when writing lists( which we try make him do often to get his brain working) he is 80% better than what he was months ago, but some days he's so confused and doesn't even recognise his own home or my mum, and other days he remembers loads.
Sorry about the massive rant, I just want to tell people my experience of living with someone with hypoxic brain injury is like as there doesn't seem to be anything else out there to share what is a crazy time in our lives and think it's good to know your not alone.
Thinking of all of the carers out there, and anyone who has been lucky enough to survive cardiac arrest and live a good of life as my dad, hope to hear from you all 😊X