Hi all I hope your all well, and have got plans for the easter break. I would love to hear how trying daily tasks and life is. I find I have to think of trip hazards, can I carry things. Some days just simple bending down, picking things up etc can feel so hard to do. I tried out a self propelled wheelchair on Wednesday, and my weaker arm has really ached, but I won't say anything to wheelchair services, because they may say no to me. My arm just needs to get use to it, and basically I wanted it only to move very short distance. If it gives me a small pocket of independence. I wanted it for when I go to hospital on my own and they leave me in the middle of a room. I am usually nowhere near the drinks machine, magazines and usually in the way of someone. Plus if I need the toilet I have to attract someones attention. Its all independence and keeping some dignity.
My partner went shopping today and brought me some different food and a new tray. When someone buys you something and you either can't eat it or it doesn't work for you, there's a horrible feeling of guilt.