Hello, I wrote a previous post entitled "He's a fighter" about my father in law. He's suffering all the symptoms of PTA, but it doesn't appear that anyone has actually said that he has that... maybe it wasn't taken in. But either way, it's so hard watching the whole family trying to cope with him in his new "awake" state, one minute recognising people, the next not. Having to explain. Over and over where he is and what's happened . Watching the heartbreak in my fiances eyes as he tells how his dad is mouthing swear words at his mum (he still has the trache)
He tried to get naked yesterday , getting out of bed I. The night and becoming distressed when over stimulated and his wife is SO desperate to communicate with him and he's not responding very well. It's all so heart breaking. ) he's been "awake" by awake, I mean the first time he followed a command since last Saturday. it's now been 8 days which I know doesn't bode wel for the severity of the brain injury. It was hypoxia by the way due to a cardiac arrest. He was dead for 50 minutes (being worked on the whole time)
I have tried to ask my fiancé to ask the Drs if he does actually have PTA, because if that's what this is, then they would all know that this is not the version of him that they'll ultimately have. That most of this will pass. Everything else is going well, he can stand,sit, throw a ball, answer questions by nodding/shaking his head. He has never been a patient man and is becoming very fristrated with being stuck and not able to talk.
I want to tell them that if a dr can tell them this is PTA, which is a normal stage of recovery, that all of this will pass, that the sill he does have now can be built on. He's mouthing words which bodes well for when his trach comes out. But to also reassure then this is not the true "him" and most of the awful disturbing behaviours will go as soon as soon as he starts to retain info... any input would be great... feeling desperate here. No one is very open to asking the drs and its all very delicate . I just wish someone would confirm that for them.i want to make some of the pain stop for them all. Thank you all x