No wonder we get fatigued

You need a secretary Sos. It sounds horrendous......

............. keep the cuppas going. xx

Gosh, no wonder you would be feeling fatigued after all that.

Yep, time for a cuppa and just breath.... Claire xx

Quite !!

When I was first out of hospital late 14/early 15 the paperwork and appointments etc were just the worst thing ever ..... how the heck is one supposed to deal with those important / time consuming things when one has just had a BI ?? And beyond .........

FortunatelyUnfortunately I wasn't entitled to any bit of help - so they never got filled in - but my savings dwindling now so might have to relook at them.

" Sigh" ....

good luck !

So true........it's a shame that you can't get a secretary on prescription x

Horrific state of affairs- I am in process of trying to contact official things due to current situation but such an energy drain. Step change debt charity staff were excellent though and could do it all by phone. Very patient with me. Government I know from previous experience failing dla application and appeal is an entirely different kettle of fish☹️

My haemorrhage was almost certainly triggered by the stress of finding my bank account had been compromised and significant sums taken, The previous week I'd asked for my account to be closed when the first 'hit' happened but was told it was unnecessary so long as I cancelled my debit card.

When I discovered another withdrawal the following week I collapsed with the bleed. Whilst I was incapacitated for 2 months it was left to a friend to insist on the closure of my account, which naturally meant that none of my service providers or other payees received payment.

So my first job on discharge from hospital was reinstating all the standing orders & direct debits which had lapsed, and convincing the companies it hadn't been a simple case of default, not to mention sorting out my account. Pretty horrible week all in all !

Halifax were great when I returned though ; I got a 'celebrity' welcome back and a complete refund of all the money lost.

But it's a shame we have to struggle with these mind-bending issues when our only tool for these jobs doesn't work properly any more. xx

C.A.B. Helped me, it wasn't easy to constantly go over my memory problems. They were very helpful, it all seemed to make sense. Take care pal xxx

I had CAB do my DLA and other ckaims when first ill (as I had to appeal everything) but did it myself when converted to PIP, although I have to admit I copied a lot from the last form.

And yes, even copying it took hours. It looked a mess too, loads of things crossed out (after a certain length of time my brain forgets what order letters go in, even if the word is in front of me!)

At first I thought 'They won't be able to read this...' but then I decided if that meant they had to meet me and interview me that would be no bad thing. It might help them make the right decision. I can come over as relatively capable on paper. Certainly more so than if you meet me in person....

It is a right horror though and I can understand why people steer clear if they can - I was quite relieved when my pension kicked in and my ESA entitlemènt ceased. One less process to go through.

Keep on plodding on, Sos. You have our sympathy 😮

I did a cognitive course last year with my Headway. The manager was running the course, as there is not a lot of staff at our Headway due to the ever so greedy government 'stealing' money that they do not earn or need.

Anyhow, she explained how fatigue worked in a very good way.

Imagine ten people are sat at a table. At one corner, person A delivers a message. The message gets passed around from person to person until it makes a full circle and ends up at person B.

That is similar to how farigue can work.

It is easier to follow if you could visualise the scenario.

In other words, it can take longer to process things meaning our brains work even harder.

Unfortunately, most people on the outside do not get this though :(.

Gosh, a mammoth task!