Slow stream rehab

[Curly-sue]

John (husband) has been in a Nero rehab since the beginning of December they now want him to go to a slow stream rehab, has anyone had any experience of one of these rehabs and are they any good because I've not been told much about it.

Sue xx

[cat3]

Sue, the first thing which comes to mind is that in considering John for further rehab, the present team have seen potential for improvement. Otherwise they would be recommending basic residential care.

People progress at such different rates and if he's been struggling in the past few months they may have decided he needs a more gradual approach.

It can be take a year or two for some people to achieve the same level as others do in only a couple of months, meantime it's obviously a great strain on loved ones.

I hope this move will be really beneficial for John and you'll start to see more improvements in his mobility and general demeanour.

All best wishes, Cat x

[Curly-sue in reply to cat3]

Hi Cat, yeah they said he was progressing at a slow pace and needs more help to get to his full potential. Thanks for your help xx

[cat3 in reply to Curly-sue]

Keep us updated won't you ? xx

[Curly-sue in reply to cat3]

I will Cat thank you xx

[Dorsetcharlie]

Hi Sue

My husband was moved to slow steam rehab after 4 months in the rehab unit at our local hospital. At the time I thought it was a bad thing and meant there was little hope of any kind of recovery.

He was sent to Glenside in Salisbury and it was the best thing that could have happened. They were so much better equipped to understand and support the complex range issues Jake had and he made huge improvements while there. The 'fast stream' unit just didn't have the skills, experience or resources to meet his level of needs at that time.

I would think of it more as specialist than slow stream; a bit like you'd pop your car into Kwik Fit for new tyres, but you'd want to go to a specialist garage for an engine overhaul!

Good luck.

Charlie X

[Curly-sue in reply to Dorsetcharlie]

Hi Charlie, thank you so much I've been researching about the place they want to send him and it looks fantastic and I think it will be the right move for him because he's in a Nero rehab but they cater more for stroke patients and John has very complex issues that they can't deal with too. Do they do the physio side there's too? because John is starting to walk and doing quite well but he only does it with the physios not on his own yet. Thank you.

Kind regards sue xx

[cat3 in reply to Curly-sue]

Charlie ! Lovely to see your face & hope you and Jake are doing ok.

Cat xx

[Dorsetcharlie in reply to cat3]

Hi Cat. We're doing really well thank you. Hope all is well with you x

[cat3 in reply to Dorsetcharlie]

Good thanks. x

[Dorsetcharlie in reply to Curly-sue]

The Physio was amazing Sue 😊

[Kirk5w7]

Can only add my support to the other two posts seems like a good move to me xx Janet

[Curly-sue in reply to Kirk5w7]

Thank you Janet xx

[razyheath43]

OH now i get it! i thought at first glance that youre hubby was going to have re-hab in actual stream! sounded lovely lol but now i see it so good luck and hope it goes well xxx

[Curly-sue in reply to razyheath43]

Lol that made me chuckle. Thank you xx

[razyheath43 in reply to Curly-sue]

pleasure

[khumphrey]

Hi Sue

My son has been in a slow rehab setting for just over a year. Previous to that he was in NHS neuro rehab settings for 16 months. His new setting did more for him in the first four weeks than the NHS had been able to do in the 16 months and we are currently waiting to see if he can have funding to keep him there long term.

My son is 27 and had a severe brain haemorrhage in Sept 2013. He has severe physical and psychological difficulties. Because the area of his brain with the most damage is the area that deals with behaviour/ reasoning/ cognition / understanding etc, his behaviour was aggressive and violent. He could be loving and laughing one moment but aggressive and violent the next. This aggression is particularly displayed when he has to have personal care or be moved and as he is doubly incontinent this challenging behaviour is displayed several times a day. The NHS treated him with medication and restraint techniques when he should have been treated firstly from a psychological point of view which is exactly the treatment he is receiving in slow stream rehab.

The staff at his previous hospitals were caring, dedicated and extremely hard working but did not have the skills or training to deal with him. As a result of this treatment he has learnt to be aggressive and violent and we will never know if this behaviour will fully cease as it was happening for such a long time.

He is now on the whole fairly calm and quiet for most of the time with still some difficulties around his personal care. It has taken a year to get to this stage.

I would advise you to do your homework in finding the best place for him. Unfortunately some of these places can be far away. We were lucky to find one within a hour travelling distance.

He is been given this chance because he has potential for more recovery and progress. I don't know what your husbands difficulties are but you could find that given the right setting he could make big improvements but it will be slow.

You will find that these places are a lot quieter than hospitals and staff have a lot more expertise.

Good luck Sue and please don't hesitate to ask again. There is a lot more advise I could give you and share what we have learnt so far.

Karen

[Curly-sue in reply to khumphrey]

Hi Karen thank you so much for your reply it's helped alot. My husband had a cardiac arrest in September last year which has left him with hypoxia brain damage which has effected his eyesight, mobility,and cognitive , behavioural problems and he too get aggregated and aggressive at times and the Nero rehab he's in doesn't know how to handle him they just give into everything he wants for a easy shift but now he's like a spoilt brat he screams and shouts when he wants his own way and if their busy he will get very agertatted and shout NOW he also gets very sexseral with the staff and says very inappropriate stuff to them and masterbates in front of them I was horrified lol he would never of dreamt doing that before he was such a shy private man but he is the total opposite now he will talk to anyone, butt in anyone's conversation and answer people's questions when there not talking to him he's very child like now and it's very hard to see him like that. I've done a lot of research and found one about 10 miles away from us and it looks fantastic and has great reviews so he's down to go to that one. Hope you manage to get the funding for your son. Take care

Kind regards sue xx