Hi. I'm now five years post a major brain stem stroke. My functional recovery has been great. I couldn't see, sit up correctly, walk, talk clearly or do pretty much anything to start with.
Five years on, my vision is good enough to drive as long as I am well. I do not drive more than an hour away return journey and I do not drive in rush hour, rain or the dark for long. I can stay awake past midnight on the odd occasion. I will pay for that though. My sensation is still very numbed which causes more problems than I ever imagined it would, my balance is dodgy on a good day and shocking on a bad day. Concentration, which tbh was never a strong point is a problem too. Staying on task is a real task!
l am often still lethargic, tired, fatigued - whatever you want to call it, the energy to keep compensating runs out quickly and sometimes is not there when I first get up. All of the remaining impairments become far more of a problem when I am tired which leaves me at risk of physical injury and makes it extremely hard to raise a child.
I am trying to plan getting back into work as I am no longer eligible for income support, I am contemplating applying for ESA but I can't see that coming off so will be forced to apply for JSA. I am very worried that on top of running a home and a seven year old, it's going to leave me exhausted and unable to cope.
I guess the question is will it ever go away completely? At this point is it likely that returning to the level of activity possible before the accident is a pipe dream or something to work towards realistically. Having realistic expectations is critical at this point, from a personal planning perspective and also in dealing with the job centre.
Has anyone got all the way there so to speak?
Thanks for reading. X