I think the most frustrating part of recovering from my craniotomy to remove a cyst which was back in January, is the lack of control or warning I get with regard to fatigue.
On days when I feel rested I get tempted to go for long walks in the countryside as I get bored being cooped up in the house, I take my time and stop for rests, when I was off work I often walked 6 - 8 miles and it was 50/50 whether I was wiped out later the same day or next day.
I find that now I am back at work I am sometimes to tired to leave the house until its time for work again.
The bit I am wondering about is how suddenly the tiredness comes on, with me I find when I am well rested I feel pretty good and more like my pre-operation self. I can go on some longish walks on Dartmoor and a few times I have tried on my MTB as well.
When I am doing the things I enjoy I feel great, the endorphin's are flowing and my body does not physically hurt from the exertion yet time and again within an hour of getting home my head feels really pressurised, my eyes often go very red and I have to either sit or sleep it off for a few hours or sometimes a few days.
Its the same with work as well, I am a production engineer fixing machines in a high speed manufacturing factory and have to work 12 hour night shifts in a very busy environment.
Since June I have been on phased return to work plan, I have tried 6 hour shifts up to the full 12 hours shifts but can not sustain anything more than 8 hours without burning out and needing extra days off to recover.
Conversely I can go to work feeling really tired, walk straight into a mass of problems and after an hour of rushing round my headaches gone and I feel more alive than before.
What i wonder is are their other people who feel like this and how come my body lets me do the things I want and only gets me with the fatigue after I have finished what I am doing.
Quite often I get no warning I have overdone it, I find it weird I keep going from functioning to non functioning so quickly. Its like if my mind is stimulated it can over ride some other part of the brain but only for so long and then bam the other part which I don't understand whacks me down and I am not just physically drained I can feel to tired to even read a book or take it in if I do.
Anyone else relate to this?