Just an update on recent events for me.
Trip to my neurologist (12 miles away) yesterday and it was confirmed that it was 99.9% certain I will never regain my driving license, so that's me now a true ex-driver . Also confirmed that the emotional issues and severe mood swings I've suffered lately are likely to be related in part to my epilepsy medications.
There was some other suprising news as I was told that the neurosurgical team (30 miles away, who I've not heard from since Jan) have been discussing my case and looking at options to help and that they would be calling me in to discuss the options shortly. Also my epilepsy care could be shifted to their specialist team if I wanted, because in the event of any surgery/radio therapy they would be involved anyway and my full history would be available to them easier. Having discussed in clinic with my poor old, lovely wife, we have taken that offer, only trouble is it's an hour each way travelling by car but with little to no parking on site and mixing car with park and ride makes it closer to 2 hours but seems worth it. My neurologist also said he would flag up the issues I've been having and suggest a change in medication to them.
Still a bit of hope I guess as I had been told by the surgeons before Christmas that surgery wasn't an option, even if awake there was zero chance of coming out complete so guessing maybe relate to biopsy and that they are trying to weigh up benefit against risk.
Been a bit of a bumpy ride the last 3 years but at last it seems that although I might not like the answers that at least I am getting some and some possible action to maybe improve my quality of life, or at least maintain it as long as possible.
Not too sure if this a happy post or not... Gonna make it happy as answers are coming... plus I get to keep my bus pass!
Sorry for the ramble but probably the most exciting, worrying news I've had for a long while but at least news.
Thanks all this forum has been great help over the last few years and long may it be so.
P.S. Haven't seen any posts from Emma for a while and hope all is well since her recent move.