Hi. I am the long term partner of Tracey who is 40. She had an accidental hypoglycaemic (low blood sugar levels) event over Christmas resulting in, effectively, an all-over stroke or similar to a hypoxic injury. This has left her with no discernible physical problems but she has very very limited cognitive and communication functions - but she does like to walk around. She is not on any medication for her injury but is a type 1 diabetic and is fed via a PEG. She has been approved for one-to-one care by Continuing Health Care so funding is available - but I am really struggling to find suitable accommodation for her that isn't a locked facility with good rehabilitation services.
Does anyone know of any good places that also offer a good quality of life (which is the most important bit!!)?
Thanks.
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Jagiboo
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Oh gosh Jagiboo this is a very sad, life changing tragic outcome for both your long term partner Tracy and yourself. It is the extreme outcome of diabetes that most people don't expect or even realize can happen.
Sorry I have no knowledge of residential rehabilitation but just wanted you to know that I have read your post and my concerns are with you.
Best wishes and I hope you do find a suitable place to offer excellent care and rehabilitation to aid Janet's recovery to the max possible.
It's virtually impossible, without knowing where you live, to know or recomend a care facility and NO do NOT give your address here.
It will depend very much on her medical assessments and any assessment a care home will do as to wether it's locked in policy.
It's a really hard decision to make, my father-in-law has just be placed in a restricted liberty care home because of dementia, he too is very physically active and healthy. At first we thought it was a bit extreme being on lock in but after only 2 months it has proved the right choice to avoid him putting himself at risk. He would have got lost and unable to explain properly were he should be or wanted to go plus his demtia is better controlled because he gat the right balance of food and his medications regularly and at the right time.
Remember most places have garden areas for the residents to walk in and given that reletives and friends can usually vist at virtually any time they like and are often able to take the resident out for trips. Also the care homes often arrange activities for them, art, music games etc. father in law was gardening last week and loves the colouring and art work they do.
As Cat has suggested a call to the Headway helpline should be able to put your mind at rest and offer advice on the best care for her in your area as they will have better knowledge of her medical condition and requirements.
Kindest thoughts to you and hope things resolve shortly.
a good idea to ring headway helpine,as someone who has worked in supported housing,i sugest you simply turn up to look around places in youre area,without making an appoitment,that way if they allow you to look around,thats a good sighn as its more ;likely they are truly CARING,akso look at what other residents are doing,do they look happy?is the garden well kept?,or are other residents simply slumped in front of the t,v? ask as many questions as you want and whatever you choose double check care plan and supprt,Sad nwes indeed and i wish you both well.hope this helps a little
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