Well I have been over a hundred days on the caffeine-free plan and I am up to 32% headache free days and I have got rid of the restless leg syndrome. All that through misuse of the drug caffeine (tea, coffee and chocolate) … not bad. The hardest time was the amount of chocolate I was offered over Christmas!
Well the two-monthly GP visit, which my GP was supposed to initiate did not occur; which was no surprise. So back to me to look after myself. I have wrote to both my neurologist and GP with an update on progress.
On the Sunday, 4th, January I upped my Topiramate to 250mg from 200mg which is my normal dosage, and has been for many years, and I went to headache free. My neurologist did say I could go up to 500mg over time. It did take me until Tuesday, 13th January to realise that I could not keep awake during the day. Please note the following is directly taken from the side affects from Topiramate … “Very common: More than 1 in 10 people who take Topamax … sleepiness … tiredness – seek medical advice if you experience tiredness”, and I am the one with two degrees and am a member of Mensa. So much for all intelligence and no common sense!!!
Anyway I am happy to say I am back to 200mg of Topiramate and today, Wednesday, 14th January, I am wide awake. I cannot believe such a small dosage could have such an adverse affect on me. I will continue to monitor the headaches and see if they improve. A good try though.
I just thought I would blog this as an encouragement for all those other sufferers who either want to try caffeine free, or use Topiramate, or for all those plonkers who cannot read the labels on their medication. The latter is to remind them they are in good company.
All the best for 2015 to all my friends.