Hi. Looking through your posts it looks like most are related to TBI. But I wondered if anyone had any experience of hypoxic brain injury. My sister had a cardiac arrest and now has hypoxic brain injury. Initially we were told that she had considerable brain damage and did we want to turn the ventilator off. We said no and we needed to give her chance. Gradually she has improved and is awake now, sits in a wheelchair and is talking. All sounds promising however what I find so difficult is there is no engagement, she is in her own little world. Which I don't think is a nice place. She talks constantly but we can understand very little of it. She calls for mum constantly, and repeats the same phrases like ask the way, I can't do it, I see. She gets so upset talking that she cries. But if we try and engage there is nothing. She is just in her own world with what are obviously upsetting thoughts. It is heart breaking seeing her getting so upset and not being able to do anything to help her. The staff on the ward are quite optimistic because how much she has come on but I just find how she is at the moment so difficult. Has anyone else had any experiences like this? How did you help them and how did you cope? Thank you in anticipation.
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