1 month!

[B_S_A]

Until I find out how my surgery's doing.

I need stuff to do, so far I have;

1. Panicking

....

I need things to distract me.

Wait, I have things to distract me, BUT I CAN'T STOP THINKING ABOUT THIS.

[Hidden]

Hi Ben

Sorry this is so hard, hang in there Ben.

I can sort of empathise, this week I should get results of scan I had last week. Purpose of scan to determine if I need further surgery

The waiting and the not knowing is the worst isn't it.

[sporan]

I feel for you and understand a little how you must feel. It's exactly a month since I saw my neurologist who is discussing with the surgeons if surgery is viable.

I had been told last year that any surgery would cause loss of speech but that other side of brain will usually take over in time.

So I'm waiting anxiously to know as to whether they consider surgery as most effective or if they will go down either radio therapy or chemotherapy route and as yet have heard.

All I do is try and do all I have been up to now and enjoy the company of my family, especially my 4 year old granddaughter as they do take my mind off of things a bit and deliberately ignore those whose comments you will see on the 'Chronic Illness Bingo card' elsewhere on this site.

Best wishes to you and I truly hope you get the news that you need and soon.

Of course this site is great for letting your feelings and frustrations flow as everyone here will know.

[sporan in reply to sporan]

May have given wrong wording about 'Bingo card' I meant those well meaning friends and acquaintances that use those phrase's unthinkingly and NOT other members of this forum who have genuine contributions to make. Sorry amongst the other issues getting thought to paper does not always works properly and phrasing and grammar become mixed.

[Danslatete]

Don't you think it's odd how we can never concentrate on anything for very long due to distractions, yet when we need to keep distracted we can't help but over concentrate on something we would rather avoid!!!

Waiting is never easy and fear of the unknown makes it a whole lot worse, I really hope you get the news you want to hear.

The best thing is knowing that there is a heap of us on here ready to cheer you on, whatever.

[B_S_A in reply to Danslatete]

Looooooovvvveeee

[Broken_Doll]

I feel you Ben

I can't say much more than I will have fingers toes legs arms everything crossable crossed for you

You are a good person and deserve good thing s u hope you hear what you need too

Emma x