Good PCS website: I'm sure many of you have seen... - Headway

Headway

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Good PCS website

Phat01 profile image
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I'm sure many of you have seen this site but for those who haven't fightingpcs.com is well worth read.

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Phat01
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SAMBS profile image
SAMBS

HI PHAT - I'vVENEVER SEEN OR HEARD OF IT - BUT VERY INTERESTING!

Of course I've heard of concussion and know its something doctors look for immediately if a fall or head knock is involved. I am aware doctors look for fatigue and vomiting - but symptoms of concussion generally, my experience of when my kids were small, was to keep an eye on them for a few hours, then if nothing happened they'll be ok 'carry on as normal'.

Its assumed that any symptoms will be pretty immediate - the fact that neural repercussions of a head/brain injury ad/or seemingly leading perhaps o a concussion can take many days, weeks, months or even years to manifest themselves. Do the professionals really realise or understand that?

Like may others, I had no actual physical or accidental body injuries - just a spontaneous aneurysm and brain haemorrhage. So nothing to 'blame' it on. No explanations or discussions at the time or afterwards. A couple of times the neuro doctors spoke about rehabilitation while I was in hospital (10 days) - but then that's it - you can leave this afternoon - no follow up or support meant 1 nervous breakdown after 2 months and 1 brain scan after 6 months. with some other stressful situations along the way then a car accident with airbag hitting me quite hard in the face/forehead.

Because I did not know anything about potential rehabilitation for my condition, internet searches led me to Headway early last summer, I also learnt there are many others out there who also, to a greater or lesser degree, have had personality and other changes, i.e memory, vision,hearing, balance etc etc, all of which for me have been worse since the car accident. Whether its down to concussion or not I don't know. Certainly an interesting read.

Phat01 profile image
Phat01

The psychological implications of a head injury are certainly challenging, like many I'm up and down, trying to get through it, sometimes optimistic sometimes frustrated/depressed I saw my doctor today to ask him for some sleeping tablets after much persuasion he handed me a prescription for 3 zopiclones! I know you don't want to be on it too long but it cost me £8 I'm sure he thinks I'm cured and just depressed - he even tried to give me some anti depressants. Better news is he's referring me to a neurologist, so fingers crossed I'll get some light shed on my sleep problem...maybe hormone tests? I know I'd like another scan this time an MRI not CT.

Sounds like you got the full NHS care package, sew them up and send them off! When my mother was ill I remember being shocked at the way the hospital was run and thinking I'd better look after myself, oh the irony lol. Some of your symptoms are the same as PCS, dizzyness, balance etc. Do they know what caused your aneurysm?

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