does anyone have this im not sleeping yet tired out after sah and stroke, i did sleep today now i feel ill dizzy allsorts why

[vjones2]

most i normaly get at best is 2 to 3 hours max there not restdull to but last night fell asleep 12ih woke 4 went back woke 7,30 went back till 9,15 now i feel so ill dizzy lifeless eye sight bad even doig this is to much but i want to no if theres somthing more rong with me or anyone else had this

[SAMBS]

DON'T KNOW IF ANTHING WRONG WITH YOU OR NOT VJ.

I OFTEN SLEEP IN SNATCHES. NOT AWLAYS IN A BED QUITE OFTEN IN A CHAIR.

ARE YOU EATING WELL ENOUGH? LIGHTHEADED /DIZZY MIGHT MEAN LESS OXYGEN GOING TO THE BRAIN.

TRY SITTING UPRIGHT WITH BACK STRAIGHT AND TAKING SEVERAL SLOW DEEP BREATHS - IN THROUGH YOUR NOSE, OUT THROUGH THE MOUTH, THAT MAY HELP STOP THE DIZZINESS OR LIGHTHEADEDNESS A LITTLE.

IF NOT SOMEONE ELSE MAY COME UP WITH ANOTHER SUGGESTION OR FAILING THAT SPEAK TO YOUR DOCTOR OR PHONE HEADWAY MONDAY MORNING. HOPE YOU GET IT SORTED SOON. SORRY FOR CAPS, JUST ANSWERED ZEB SOMETHING AND FORGET TO TUR CAPS OFF AFTERWARDS.X

[vjones2 in reply to SAMBS]

what little i get is on sttee not bedi am so tired in day but carnt nod of mind races had normal couple hours last night on sofa today head pain normal not good not nice but dizzy not as bad as not slept thanks for reply v x

[leonardc110]

I had a SAH in September 2010. I wake up at least 3 times during the night but I also had a pulmonary embolism and DVT so my legs have really suffered.Add in Restless legs syndrome and I can understand whyI don't sleep well. Slowly my body has adjusted to the discomfort but I am often very tired during the day. I would go back to your doctor for help. Your dizziness could be a result of the SAH but you could also have some form of vertigo or labyrinthitis.I hope things settle down for you but try to stay awake during the day if you can. Good luck.

[vjones2 in reply to leonardc110]

my sah was 2010 aswelli got operated on lets say way 2 late not waltons fault local hspital left me 9 days and you no wht state were in i had stroke day after operatin so no use left side got subluxed shoulder no phyiso no nthing i have bad headahes not like the sah time tho but still want drill hole in head think 3 holes is enough 1 from sah 1 from stroke and 1 from fall 2 weeks before sah, i used to sleep wel not now like had my normal bit last night dizzy not as bad today head pain is to id love to nodd of in day but minds raceing and pain in shoulder , im scared to tell people that im seeing scarey visions awake and the hour i get slep 2 maxhad bad fall few weeks ago i no its put me back my balace is bad dont no if its sah or stroke or what to be honest ive been sitting here since 4 i was talking to friend on phone at 12pm they just rang to say night and how was i , then sorta lay on settee to try sleep within a couplr hours awake with horrible thoughts and dont no if dream or 1 of my seeing things but this was dead bodies skeltons allsorts day 1s rang from baths with umberllas to metal round rooms staircase with dead people onscared teling neuro incase they say i need putting away v x

[Hidden]

YOU ARE CERTAINLY NOT ALONE IN THIS.

MY SLEEP PATTERN HAS BEEN RUBBISH FOR THE LAST 4 MONTHS. FOR SOME REASON I CAN'T SLEEP IN BED ONLY ON THE SETTEE. I LET MYSELF DO THAT SO AT LEAST I DO GET SOME SLEEP.

. I DIDN'T KNOW WHY.SLEEP SEEMS TO MAKE ME FEEL SO ILL. I MENTIONED THIS TO THE NEURO WHO SAID IT WAS DODGY NEUROTRANSMITTERS & OTHER BRAIN CHEMISTRY ISSUES CAUSED BY MY BI. NEURO ALSO AGREED THAT IT'S B ECAUSE I'VE BEEN UNDER A HUGE AMOUNT OF STRESS FOR THE LAST 6 MONTHS. STRESS IS A MAJOR FACTOR IN BAD SLEEP . I TENDED TO WAKE UP IN THE MORNING FEELING SO ILL - NAUSEOUS, WITH EYES THAT WON'T FUNCTION, A MASSIVE HEADACHE & CRIPPLING ANXIETY. MY NEURO PUT ME ON ANTIDEPRESSANTS WHICH HAVE HELPED A LOT. I DON'T FELL SO ILL IN THE MORNING AND THE ANXIETY IS CONTROLLED WELL. MAYBE WORTH TRYING IT. HEADACHES ARE PART OF THE BI SO PAIN KILLERS ARE THE ONLY OPTION FOR ME

. IT IS WORTH TRYING TO AVOID STRESS I HATE IT WHEN PEOPLE SAY THAT AS IT'S SO DIFFICULT BUT IT IS TRUE & MAYBE TALK TO THE NEURO ABOUT POSSIBLE BRAIN CHEMISTRY PROLEMS & STUFF LIKE THAT.

BEST OF LUCK

[vjones2 in reply to Hidden]

stress i agree i get it all time from myself and others i carnt take antidepressents im on high stength pain killers for head pain they dont work this headache lady said from sah stroke with cluster and nothing cud realy help and most come in 2 her on same pillsim on settee sofa to carnt lye down from pain im tired now but i no ill never sleep if i put pillow under me 2 ill try get back of sofa end up dizzy so ill sit on uncomfy stool my last time in hospital i was awake before nurses ut wired thing after my fall few weeks ago i carnt read a clock now normal 1 , noticed it in hospital as clock was over door i feel im going backwards my sister thinks bit phyiso ill be ok , please i wsh shed understandyesmy left side isant working right and had no phyiso se will not listen its our brain then i get stressed she nos better than anyone

[Hidden in reply to Hidden]

YOU ARE HAVING A REALLY ROUGH TIME OF IT. I'M SO SORRY.I EMPATHISE WITH YOU SO MUCH.

MYHEADACHES ARE CLUSTER & THE ONLY THING THAT WORKS ARETHE TRIPTAN GROUP OF DRUGS.I TAKE MAXALT MELTS-, RIZATRIPTA- LOZENGES THAT MELT ON THE TOUNGUAND ARE REALLY EFFECTIVE . AFTER 12 YEARS OF TRYING EVERY PAIN KILLER KNOWN TO MAN I HAVE AT LAST FOUND THE ONE THAT WORKS. I AM ALSO ON LAMOTRITINE FOR EPILEPSY CAUSED BY GI,, PROPRANOLOL FOR THE HEAD PAIN BUT THE NEURO SAID THE CIPRALEX ANTI DEPRESS ARE OK WITH THIS MIXTURE OF DRUGS. COULD IT BE A CASE OF FINDING THE RIGHT MIX OF DRUGS THAT COULD HELP WITH THE INSOMNIA & THE HEADPAIN.

I GAVE UP SPEAKING TO THE GP YEARS AGO, HE SAID HE WOULDN'T DEAL WITH BRAINS AS IT'S TOO SPECIALISED. I ONLY EVER SPEAK TO THE NEUROLOGIST (& THE NEUROSURGEON IN THEOLD DAYS) THEY KNOW WHAT THEY'RE TALKING ABOUT & CAN HELP. GIVEN THE SEVERITY OF YOUR SYMPTOMS TRY TO HAVE A SERIOUS TALK WITH HIM/HER. THERE MUST BE SOMETHING THEY CAN DO, YOU SHOULDN'T BE BEING LEFT WITH THIS SEVERITY OF SYMPTOMS.

COULD IT BE A SLEEP DISORDER? I'M NO EXPERT AT ALL BUT HAVE SEEN A SERIES ABOUT SLEEP DISORDERS & PEOPLE SEEING HORRENDOUS THINGS WHEN A SLEEP & IT WAS CALLED SOMETHING LIKE NIGHT TERRORS WHICH ARE TREATABLE. THEY WERE REFERRED TO A SPECLIALIST SLEEP CLINIC. COULD IT BE WORTH ASKING NEURO ABOUT THIS? I DO OPE YOU CAN GET THE HELP YOU NEED, IT'S MISERABLE LIVING LIKE THIS.

THE FIRST THING I REMEMBER WHEN I STARTED TO BE A BIT WITH IT AGAIN AFTER THE BI WAS THAT I CAN'T READ A CLOCK ANYMORE, THE HANDS ARE MEANINGLESS LINES. STRANGE HOW THESEWEIRD THINGS HAPPEN ISN'T IT.

TAKE CARE & I FEEL FOR YOU.

[celtic27465]

It not unusual to have insomnia after a Sah I had one last last year and I had to ask my doctor for something to help he was at first reluctant to give me anything due to my San but eventually gave me amitripylene which have made a difference ! Have you discussed your sleeping problem with your doctor as he might be more receptive that you think to giving you something short term to help you sleep ! I hope I've been able to help you and good luck with your recovery !

[vjones2 in reply to celtic27465]

thank you ive read amitripiline before was good for us i just managed to get gp appointment hes not very good not intrested i met ady in vet shed had a sah but had no after effects no disabilty she looked great and was well i looked talked to her thought why am i differnt she sort of explained she received help straight away and did not have the full stroke toi sat there wanting to swap with herwe no not possible but im pleased she came out good she was took neuro hospital in 4 hours , i got left in local hospital 9days in out of cmma i rember bits1st night i got there pleededing wee i ended up on floor dont no if got loo or not 2 this day ou no the pain that comes with sah boy all i rember is pain not able 2 see and wanting try 2 see but as son i tried light oh its mentaly sarey writing thisive only got 2 family a sis and aunt they were both 2 scared as i was just left in pin not with the world thanks for info he may give me some

[celtic27465 in reply to vjones2]

If you feel your doctor isn't supporting you ask to see someone else if there are more han one in the practice ! If you feel strongly about thing about a change of doctor! Please ask anyone in this group we are only to happy to try and help you ! Take care

[vjones2 in reply to celtic27465]

serious my gp is not intrested 1 bit ive asked 2 see the other one get told i have to see mine yet hes not even gone threw my notes i had to give him my own he said ive no time for doing forms or notes from bfore people think i sit on bum drinking tea all day not realy good answr when asking for help i took a advocate in 1 day he was so abrupt with us both yet says on wall if you want 2 take someone in you can theres also a note saying 5min appoint no longer, i wasnt with him when had sah/stroke my old gp retired,this is aso why he needs read my notes but wount he even paid my old gp for a med report 390.00 i seen it on pc screen in nurse office prob wasnt surposed 2 see but she left page open went 2 get somthing ive also had constant infecions since im on antibiotics constant thats no good need to find why dont ge me wrong if you seen him visiting old people in hospital youd think nice man, just doesnt want to no complicated or be bothered reading notes i had 1 of those dwp forms hed not do it told me go cab our lives hard enouh without a gp not bothered 2 even help with living costsor meds or notes ill see him thurday but i no ill not get far but can but try thanks for your input v

[celtic27465 in reply to vjones2]

Sorry to hear your still having bother getting your doctor to help ! If this continues I would consider changing the doctors practice as it sounds if your doctors not interested ! You can complain to your local health board also stating that you feel you are not getting proper care from your doctor ! Please let me know how you are getting on with this matter. Take care

[celtic27465]

Another try phoning headway and see if they can help you ! I'm unsure of the phone number maybe someone else can help !

[celtic27465]

Hi I've found the number for you for headway its 0808002244 good luck