hypoxic brain injury

[red_spinel]

I maybe wrong, but the most frustrating issue i have with memory loss is other people not understanding it.....

[Kirk5w7]

It's that invisible illness isn't it, I find it very frustrating too, I only have a little problem with my short term memory, with me it's sight problems I need very bright light and my peripheral vision on the right, my eyes work ok it's the transfer of info in my brain that's the problem, it's so annoying when people think you are making it up, as if you would, I'd like nothing more than to be how I was before. You just have to get on with it xxxxxx Janet

[iforget]

I have no short term memory to speak of following my injury and it IS a challenge... my biggest frustration is not with others, but with myself...and that I forget that I won't remember and in doing so I unwittingly sabotage my own best efforts. For example I take notes but they mean nothing when I return to them later...that is always assuming I actually do return to them later...because as soon as I make the notes I forget I made them so I definitely won't remember to go and look at them again...finding them is always a surprise...that they don't make sense is becoming less of a shock...

If I cannot see thing they cease to exist so if I want a particular thing and I cannot see it there I will assume I do not have it and I will buy another - even though I may have done this many times already and have a cupboard full of this item tucked away somewhere.

I have never felt frustrated that others do not understand it...why should they? I did not understand before it became an issue for me...to some extent I still don't and why should I expect others to so something I did/could not do myself?

I attended the memory aids programme and with the gadgets and strategies they gave me life has improved and when it works, it works well... but when it fails it is spectacular and there is no hiding it...but there is no point in my getting frustrated so I just pick myself up and start over...

When people say things like "Oh I forget stuff all the time" I just smile... They do not mean anything by this, they are trying to empathise and they really do not understand...how could they? I would not wish this on my worst enemy and I hope the people around me never get to truly understand.

Yes it is a challenge but I don't have enough energy to waste feeling frustrated at others for not understanding my issues...

I wish you less frustrating days ahead.

[diathoma]

My husbands hypoxic injury happened on the 16th December - has a defib fitted and remains on a Cardio ward....not the right place! waiting to be moved to a local rehab hospital is a nightmare - he is so scared and so am I.

[Negeen]

I feel like it would be helpful to just walk arpund with bandages on our heads.