Hi folks....: For those of you who have read about... - Headway

Headway

10,529 members12,827 posts

Hi folks....

4 Replies

For those of you who have read about me and my life since my brain haemorrhage It's been a busy time, but here's a little of what's been occurring.......

After complications...I met with my sister, it wasn't good or bad, just different. Unfortunately and sadly it will never be the same again, she had no answers for why she stopped contact with me 10 months after my B.H. and that hurt, it hurt very, very much. But, hey ho life goes on and what will be will be.......

We have also, again had the dreaded form from DWP/ATOS :( (Put in the drawer until we had to deal with it)

We have seen a psychiatrist (on recommendation) to see if I can have any medication to stop my anxiety levels going from green to red and then me going into flight or fight mode, its only a maybe, but I hope to be prescribed something in the new year.

Saw consultant....AVM ( cause of brain haemorrhage) still active, but has reduced in size and hopefully with more radiation in 2014 it will be gone. Fingers crossed hey!

Also we have had a very lengthy and detailed report re my brain injury. A bit late, but better late than never. ( I was not treated for the injuries to my brain until 2012, had B.H 2008. I would say I'm a classic case of just because you can't see it, doesn't mean it's not there)

Anyway.....the reading was not pretty, but all in all it was what we already knew. Seeing things in writing is so upsetting and it knocked me for six and I think "I cried a river"..... but again....life goes on, I may have lost my independence but I /we have learnt and continue to learn how best to cope/manage and live with this new brain injury life....and all considered it ain't too bad

Back to the drawer now and the dreaded form for DWP (ATOS) We have sent photo copies of all the reports re my brain injuries and if the reading doesn't once and for all put me in the support group....well! god help them....

There's been so much happening and now it's Christmas......phew!!!

Breath Joanne Breath......

I would like to wish everyone on this site a Happy Christmas, I hope each and everyone of you have the best time you can

My very best wishes to you all for 2014

P.S. A bit early, but my New years resolution is to make 2014 the best year I can for me, hubby and family...... like the saying goes...."the best is yet to come" I so hope it is

4 Replies

Hi!

Well you have certainly been on a rollacoaster!! You sound very positive in your post, which is great. Embrace the 'new' you and have a cracking Christmas with your family and friends. Take care. xx

in reply to

Thank you Wolfie2dogs... all the best

cat3 profile image
cat3

I'm so sorry the reunion with your sister was such a disappointment. I lost my brother (only sibling) this year and on weekly hospital visits over a 2 year period we were developing a closeness which everyday life doesn't always allow, so naturally the loss was all the greater. And he was 'there' for me when I had my SAH 2 years ago. So I can't imagine how it must feel for you, having been so close previously, and still not knowing why your sister 'walked away'. That is an irreplaceable relationship but there are plenty of 'brothers & sisters' here ready to act as understudies !

It sounds like your AVM is under control and I hope it can be thoroughly zapped in the new year. I was given a lengthy print-out of events & treatments on discharge from hospital & couldn't relate to it for months........it's almost too shocking to take in at first.

I hope your claim goes through without difficulty and that it's a good new year for you.

Happy Christmas Joanne. xx

in reply to cat3

Thanks cat and all the best to you, have a lovely happy Christmas

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