Hemachromatosis

[PurpleRose74]

I was diagnosed with hemochromatosis in 2015, which I’m a carrier meaning I have a dna from my dad and mom so that made me a carrier so with that I could have given my children this but fortunately their dad is Hispanic and this only runs in Caucasian people. When I found out that I had this my iron levels was 600, but now I just have to watch what I eat and go to the doctor every three months.

[Bumpity]

Hi PurpleRose74 I was told that I too am a carrier for haemochromatosis some years ago. At the time I was seeing my GP for another problem and mentioned my brother etc., and concerns for my child. My GP said that it usually showed up around the 40 years of age mark and was probably from my parents Celtic background and, as a precaution she would put a flag on my child's notes so in the future should he have any problems hopefully it will be taken notice of. It's worth a chat with your children's GP to do the same just in case.

[isi123]

Hello PurpleRose74, I am from spain 🙂 and i only have one gene from my mother and I have hemochromatosis,it is not common but it happens,for this reason it is best that when your children reach adulthood 20s, their doctor checks their iron metabolism is working properly. Do you know if you are homozygous or double heterozygous? Do you have phlebotomies?

[PurpleRose74 in reply to isi123]

yes both of my children have been checked since their dad was Hispanic they didn’t inherent the hemachromatosis, yes I have to have phlebotomies done when my iron levels get over 100 ,

[LaceyLady in reply to PurpleRose74]

where are you in the country please

[LaceyLady]

I was told by a nurse from the GH that quite often people are told they are carriers when they actually have Haemochromatosis! Miss read the results.