Sleep Issues, please help 🙏

[T808]

When does sleep get better once you reach a good level of thyroid meds? I can't seem to sleep more than 4 hours. Before I became overmedicated I used to be able to sleep 8 hrs no problem. This week Im down to 100mcgs of levo after a brief experiment of 125mcgs because my tsh was 1.03 (thought I had room to wiggle) But my tachycardia went way up again for a week, sleep even worse after only 5 days on 125mcgs. My heart rate has been a lot better the last few days. Symptoms of inappropriate sinus tachycardia have subsided quite a bit but still arent perfect. I'm waiting to do ft3 ft4 and vitamin levels with iron panel in a private test once I've been on this 100mcgs dose for 6 weeks. Previously was on 112 for 6 weeks but they only tested TSH. And still had sleep issues that whole 6 weeks on 112.

I also used to be able to take naps mid day if I wanted. I can't even take naps now since this whole thing started 4 months ago. I fall asleep okay at night but frequently wake up 2 hrs after or 4 hrs after. And then I can't get back to sleep. I'm taking 6mg of melatonin and 25mg of benadryl. If it gets really bad I'll take a 1.85mg of Mirtazapine but usually that's once a week or once every 2 weeks. But it will knock me out for 8 hrs but make me feel like a zombie for a day after. Also it affects t4 to t3 conversion so I try not to use it unless desperate. I know you guys are probably sick of my questions by now but I'm at my wits end and desperate. Does it take weeks or months to see improvement in sleep once you're on a proper dose? I don't want to get addicted to sleep meds. Have you heard of anyone without a thyroid needing less than 100mcgs of levo? Now I'm starting to think I'm still slightly overmedicated because I lost all that weight. Any insight would be greatly appreciated 🙏 I skydive for a living and havent been able to work the past 4 months. Please help me 🙏

[Shredder29]

I have to be honest sleep problems were a nightmare for me after having radio iodine treatment for Graves. It was years before I could sleep properly but even then I had to secure liothyronine to start feeling better. Initially liothyronine made my insomnia worse but as I built up slowly my sleep started to improve. I still take half a mitrazapine tablet to aid me falling asleep but at least I can sleep now. Insomnia was awful for me for a long time before it improved. Good luck.

[Cavapoochonowner in reply to Shredder29]

hello there, I have graves and the insomnia was terrible before I was optimally medicated.My mind was racing and just couldn't sleep well.My sleep is ok at the moment but I do take amitriptyline for migraine prevention at 20mg per night and I think that aids sleep.I am awaiting a thyroidectomy at the moment so I'm hoping the ups and downs of graves will be a thing of the past.Wishing you all the best.