I seem to have Lactose intolerance now, 2 years after diagnosed coeliac..Surgery didnt agree.Is this unusual.

[asborne]

[Hidden]

i think it's possible. I've found that my tum is more sensitive to different foods which is really annoying...I can no longer tolerate nuts, so maybe that's it. I'm a great believer in remove it from your diet and see what happens. There do seem to be quite a few coeliacs who can't tolerate lactose.

[asborne in reply to Hidden]

HI, was managing well then foolishly had choc turkish delight couple days ago still not right. Just thought I would be ok.

[Hidden in reply to asborne]

I don't think the choc turkish delight is GF.....have you checked/

[asborne in reply to Hidden]

It was Cadbury choc bar, didnt check as thought it was a maybe one for GF, so for once chanced it, never expected to suffer so much, was thinking more in line of milk or lactose. what ever it wasnt worth it.

[Penel]

I realised I was lactose intolerant some time after diagnosis - can't remember exactly how long after. I was suprised by this. As jillp says, it does seem common for people to become sensitive to other food over time. You know your body best.

You could try some lactose free products and see if they suit you. Your body can get the calcium it needs from foods other than dairy, so don't worry if you have to give up dairy.

[Lynxcat]

Hi Asborne, Your culprit is most likely the jelly middle - the Turkish delight part of the bar. The Turkish delight is sweetened with Wheat Glucose Syrup.

The full list of ingredients are as follows:

Legal Descriptor: Turkish Delight Covered with Milk Chocolate

Contains: Milk Chocolate (27%).

Ingredients: Sugar, Wheat Glucose Syrup, Water, Milk Solids, Cocoa Butter, Cocoa Mass, Wheat Starch, Vegetable Oil (Contains Soya), Vegetable Gum (440), Colours (102, 110, 124), Food Acids (330, 331), Flavours, Emulsifier (Soya Lecithin). May contain traces of Nuts. Milk Chocolate contains Cocoa Solids 26%, Milk Solids 28%.

Here is the link to the page where the ingredients and further information can be found:

cadbury.com.au/Products/Cho...

[Hidden in reply to Lynxcat]

Actually Lynxcat, did you spot the wheat starch as well?

Asborne, I'd see if I got better first before ditching the lactose

[asborne in reply to Lynxcat]

Very helpfull, no wonder it effected me as must be extra sensitive now. Had a good read.

[asborne in reply to Lynxcat]

Rekon your right. Twicewas glutened before but had 2hours violent reaction both times then was ok. This time has been long and drawn out.

[Lynxcat in reply to asborne]

I have found that in the last twelve months especially I have become far more affected by gluten. Although I did my utmost to avoid it in the first place - I now take extra care as any accidental intake of even a whisp worth makes me so diabolically dreadfully ill - mild headache followed by several bouts of sickness then hot and cold and sweating and dithering and finally after several sickness episodes a headache that feels as though someone has hit me over the head with a concrete block. I just dread to think what I would feel like if ever I attempted to eat Codex wheat starch or malted grain or maltodextrin .. etc .. it is too frightening to contemplate!!!!!!!

[asborne in reply to Lynxcat]

Noted today a hospital main gf meal had in ingredients WHEAT DEXTROSE in cottage pie, is that same as wheat glucose syrup. I wasnt the patient, but would be having same if I was, so bit concerned not that could domuch about it. Wonder how many other gf product do same.

[Lynxcat in reply to asborne]

Hi Asborne, This is what is stated in the US:

"Dextrin

Dextrin made from corn, potato, arrowroot, rice, or tapioca is gluten free. It can be made from wheat, though this is rare and would not be gluten free. If dextrin is made from wheat, "wheat" will appear on the label."

glutenfreeliving.com/ingred...

If it were me, I would avoid it!

[Lynxcat in reply to Lynxcat]

Sorry meant to add the Wiki info as well:

"Special care is necessary when checking product ingredient lists since gluten comes in many forms: vegetable proteins and starch, modified food starch (when derived from wheat instead of maize), malt flavoring, including maltodextrine, dextrine, unless specifically labeled as corn malt. Many ingredients contain wheat or barley derivatives. ..."

[asborne in reply to Lynxcat]

If a patient that would not be possible. I ust happened to read the ingredients. As most staff in hospitals are not wised up enough yet re coeliacs. And if mentioned little importants would be done as it was labelled gluten free and the is what staff go off. Really they think they are doing their best, but us coeliacs are more wised up. To say anything wouldnt go down well as its not important to non coeliacs. The staff mean well but do their best. Meals are provided by kitchen and if staff get gf meals prepared they take it as correct...not always done in hospital kitchen ...could be outside firm, which I think this was, didnt like to take label.

[Lynxcat in reply to asborne]

Heaven's knows how I would fair then as just an inkling of gluten in any way shape or form and I am hanging over a toilet for hours and hours with volatile sickness. I go cold and dithery and hot and sweaty over and over and over again. My head pounds and pounds and pounds and then I'm usually sick all over again. I usually feel completely wrung out then for a few days! That was what happened to me on Christmas Day with a micro-portion of 'gluten free' Christmas cake .. never want to experience anything like it ever again!!!!!

[asborne in reply to Lynxcat]

That is what my reaction is after about 2 hours of having gluten, that is why I was interested in the patient meal ingredients and it really bothered me on reading WHEAT dextrose Yet some coeliacs often cheat and get away with it...even diagnosed ones. Odd to put wheat dextrose inmain meal rather scary, or am I being an over fussyworrier.

[Lynxcat in reply to asborne]

But, just because they may not feel any reaction to eating it, does it mean that they are really getting away with it? It may mean that it could be silently floating about and creating havoc and illness in the future. It is difficult to call. I think, and this is my own personal choice and thought, that even if I didn't have any reaction from accidentally consuming something that could - may be - contain a minute amount of gluten .... I would still steer clear of it on any future occasion. I just value my health too much and wouldn't wish to gamble that it may be all right and damage may not come out in the future in some other illness or autoimmune disease ....

I don't think you are being fussy - I would say that you are being sensible - to be ill from gluten poisoning is truly both frightening and dreadful, at Christmas my throat was stripped of its skin in patches - so - I think it is sensible to (as they say in Yorkshire) think on!

[asborne in reply to Lynxcat]

Was in hospital January it had NGCI food,beats me why apart from expence. I didnt feel well, eventually had very bad gluten reaction. Surely it would be better to provide gluten free hospital food. I didnt have anyone to bring in food for me so nothing to eat after 5.30 pm till tea and toast at 9 am.

[asborne in reply to Lynxcat]

in February As a patient I had a very severe gluten reaction and was very weak and poorly the following day. The staff couldnt care less, which I never expected. The following day I was an absolute wreck , very weak and shivery. Sister said your temp is 35.5 which is ideal, the gluten is well out of your system now your alright. I was being sent home with a very painful foot feeling ill and very faint and cold. After being ignored I put myself on floor out of wheelchair (to take me to taxi) and quietly telling staff they had no caring attitude or understanding of coeliac reactions and effects. Then was put on another ward for night, this sister was pleasant and caring to all patients. At home it was a struggle due to foot injury that I might ADD HAPPENED IN same hOSPITAL AND again was told NOTHING WRONG. I am still having to pay for help in spite of it happening in hospital..

[leec78]

I have a friend who is coeliac about a year after his diagnosed he develop an intolerance to lactose.His Dr said this was to be expected and was nothing to worry about.As for the Turkish delight you should see if you can find proper traditionally made Turkish delight as the ingredients are simply sugar,water,corn starch,citric acid. Obviously always check a reputable person will be able to tell you what is in it.Hope this is helpful.

[barny]

hi i have been cd fo 18montha and i carnt have yogets for some reson they upset mt me but am ok with milk so dont know why i had a desert yesterday thinking i would be ok but no was ill all night best luck

[Lynxcat in reply to barny]

What yoghurts are you eating Barny? Are they plain? The flavoured ones often contain modified starch, which can be wheat some also have wheat syrup sometimes called glucose.

If you have never tried plain ones before go for Greek Yoghurts as these are exceptionally mild and naturally thick and stir in your own flavours such as honey, nuts, your favourite jam or compote, etc.

[barny in reply to Lynxcat]

hi the flavord ones but have stopped eating them because of making me ill will try those thanks lynxcat

[hilly2]

i can no longer tolerate any dairy or eggs, slowly decreased my dairy consumption could drink goats milk for a little while until i started feeling really sick, have now given up all dairy and feel lots better

[asborne]

Hard to believe that being tempted has caused so much adominal inflammation. Yet some can cheat and get little trouble. Thanks for all advice

[Hidden]

After you've been gf for a while any contamination or gluten will make you feel really bad. I'm glad for you that we have managed to pin it down to the choc bar.....having to be lactose free is another pain in the neck and just makes life even more difficult. I have been lucky because although there are some odd things that are GF that don't agree with me, lactose ha never caused any problems. I do hope you feel better soon...bananas are really good for soothing the system x

[salzado]

Hi Asbourn I have coelic, lactoes intolorant, ans also soya intolorant, my GP says that one intolorance can lead to others, I just cut out anything that upsets me, by the way if anyone is like me,Boots do a panadol that is lactoes free. its boots own. just in case you may need pain killers.

plenty of resh food, it does get boring but have found its better then being bloated and sick all the time.

[benjac64]

Hi - I am Gluten intolerant and was lactose intolerant for about a 2 year period but I now seem to be able to tolerate lactose - not sure if I put it down to giving up the gluten after a period of time and the gut is now healed to enable it to cope with lactose or if the the diet Ifoolowed "the liver and bowel cleansing diet"- which helps to cleanse and repair the bowel and liver ! maybe coincident or the lack of gluten but it helped me - although I do tend not to over indulge in dairy products and have rice milk for cereals I know I can eat chocolate and other dairy products without the nausea and upset stomach!

I attended a lecture on lactose intolerance at the Allergy show a few years ago, and they advised to periodically test the intolerance by introducing dairy products to see if the gut has healed, also very mature cheese and parmesan can be ok for some with lactose intolerances.

Hope this helps

amazon.co.uk/The-Healthy-Li...

[john-b]

I also developed a lactose intolerance about three years after being diagnosed as CD. I went a strict candida diet, no sugar at all, and that includes lactose... I lasted for 10 months, they were difficult to say the least but i can now tolerate lactose again no problem. Solgar do sell a lactase supplement which does help digest it if you just have to eat it!

[asborne in reply to john-b]

Thanks john, hardly have any sweet things now, little on cereal, and little in tea so could easily give it a try and do without.

[Jacks in reply to john-b]

Solgar's lactase enzymes used to be brilliant. But now they are now reformulated and contain wheat, so check your bottle if you use them. QUEST still make a gluten/wheat free one.

[SuzzleBrickLane]

For those that are lactose intolerant, the Lactofree range is pretty good and does at least allow you to have some old favourites like yogurt, ice cream and milk in tea and coffee. They also do portion packs so you can take some milk with you if you're going out, since very few cafes and restaurants carry the stuff as standard. Ocado also have the Lindahl's Turkish-style lactose-free yogurt if you prefer natural yogurt to sweetened.

[asborne]

Appreciate all advice given.

[asborne]

After using soya milk for some weeks, went back onto cows milkand am now regretting it Will have to stock up on soya milk again Yet gp says I cannot be lactose intolerant at my age. Its hard to believe cows milk can cause such pains.