Gluten Ataxia update

[Irene]

Having ataxia led to one of the Guerrillas being diagnosed with CD. It's interesting to then see the update to the Sheffield study on #gluten ataxia #coeliac #coeliac. Have you experienced ataxia? celiacdisease.about.com/b/2...

[hilly2]

i read the article very interesting, i had extreme migraines, brain fog before going gluten free and now i feel totally well and have not had a migraine since

[Allie65]

I am only self diagnosed coeliac having had two negative blood tests so my doctors have refused to do a biopsy. However, I had Gluten Ataxia for 10 years. I had vertigo, major balance issues, sickness, blurred vision, migraines with flashing lights, brain fog, memory loss, especially short term memory, which has never improved, panic attacks, mood swings,

clumsiness. It is just so scary that all this was caused just from ingesting gluten. I am so glad that I have found the cause and feel so much better but do feel that some of the damage that was done is irreversible as the memory is still not what is was before.

[autogirl in reply to Allie65]

Hi, your symptoms are low blood pressure and autoimmune thyroiditis.these are often assocated with gluten problems . you need a TPOab test and FT3/FT4

done as your body is attacking itself. i have this problem and take natural thyroid ,

vitamins and supplements to control this.!!!i also am gluten sensative .the panic attacks are Adrenal hormone problem . they get weak as the thyroid and Adrenals work together. i take supplements to raise my blood pressure.

[deltauk in reply to autogirl]

Hi, what supplements do you take to raise your blood pressure as mine is always low, I take salt to get it back up a bit ??

[zoombie]

And if I knew which department of the NHS to sue, believe me I would. I have been to hell and back with the CD and when I get to 60 I am finally diagnosed as my body decided it had had enough and I now have DH as well. All the medical problems I have had throughout my life are directly attributable to CD but the doctors and consultants have never picked it up. Needless to say, my children are now undergoing tests and it looks as though my daughter is a coeliac but I can only thank God that we have caught her CD in time before it does any serious damage as it has done to me. I personally think all doctors should be looking for CD first before they start diagnosing but many older doctors are not trained or have no real idea of the damage CD can cause and a lot of them still say its IBS or just in your head! Hmph Rant over for today! x