Thyroid , Coeliac & Type 1

Hello,

1 of my daughters is coeliac and Type 1. We have just been given the devestating news that her antibodies are raised (off lab scale) and are attaching her thyroid. It is only a matter of time before her thyroid will become underactive.

Is there any one else here who has all 3 andif so can you tell me how much more of an impact on life an underactive thyroid has. She is only 11. It's heartbreaking.

Touch wood my other daughter has coeliac. My other 3 have screened clear to date.

Best wishes

Angea

13 Replies

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  • I have 2 of them, the coeliac and underactive thyroid. The underactive thyroid can make me very tired and lethargic and even once they have the medication right, there are still times when I just feel exhausted. Whether that's different in one so young I don't know. Weight gain and losing weight is more of an issue so you'll need to help her keep her weight under control. I do know that having gone into the menopause it has affected my thyroid and they keep checking my levels. It's possible that going into puberty might well play havoc with your daughter's too. My advice to you would be to make a list of all your concerns and talk them over with your daughter's consultant. GP's are all very good but aren't always as expert as needed in these cases. I hope she copes ok x

  • Hi,

    Thank you

    Angela

  • Hi,

    Thank you.It all really helps. I just wan to be able to support Claudia as much as possible.

    Best wishes

    Angela

  • Hi DiabetesPower, What a shame that your daughter is caught up in this cruel web of ailments. Just a thought but has your doctor prescribed anything at all for the thyroid problem? I had half of mine removed eleven years ago. I found myself reading up a lot about it but after it had happened. It was well before being diagnosed for coeliacs. There were recommendations to eat sea vegetables (sea weeds) and increase the amount of sea fish in the diet. To eat more vitamin B and some had thought about avoiding too much artificial light. It became difficult to try and hack my way through the reams of fact and fiction that had been published both online and in books and magazines. At that point, I was blaming myself for although I ate fish - I didn't have knowledge of sea vegetables - I'd heard of lava bread and read a few articles about nori and, of course, kelp.

    Perhaps, if you have a word with the doctor and ask whether it might be advisable to increase the amount of sea food in your daughters diet may be of help to strengthen her thyroid.

    There is a small article of strengthening the thyroid here:

    naturalways.com/thyroid.htm

    And a further chart that gives indications about both Adrenals and Thyroid, which is quite interesting:

    drrind.com/therapies/metabo...

  • Hi,

    We were thinking of extra vitamins and food sthat may help. I will have a look and ask Claudia's dietician.

    Thank you

    Angela

  • Hi there how worrying this must be for you. It sounds like your daughter's thyroid been compromised as part of another autoimmune disease. If like me she has Hashimotos Thyroiditis then you may find this website useful. Also worth getting her doctor to check her out.

    medicinenet.com/hashimotos_...

  • Hi,

    You are right they were talking about Hashimotos. I will have a look at the link. Her Consultant is amazing. They are checking again at the next clinic appointment unless anything concerns me before. They said it will be a slow not raid and they will not treat with medication until is needed. (if that makes sense)

    Thank you

    Angela

  • Hi there sorry to hear about your daughter but i have all 3, and to be honest its not affected me too bad....the main problem i have is getting a balance between the coeliac and the diabetes.....the thyroid hasnt bothered me at all too be honest, only when i forget to take my meds.....hope your daughter gets on ok at the hospital, they will keep a close eye on her.....

  • Hello,

    We manage very well or should I say Claudia is a superstar. For me as I mum it hurts, that she is so young.

    Thanks for sharing it all helps.

    Angela

  • The best information I have come across ...having struggled for years .... thedr.com Dr Tom O' Bryan......gluten world

  • Thank you. I will have a look .

    Angela

  • Hi Angea

    This is very sad. It is very Likley that it's all related. There is no reason why it can't be resolved if not dramatically improved. It is a complex matter to address but my best advise would be to seek a doctor or medical nutritionist who practices based around a functional medicine model within your area (search functional medicine, alternatively send me your email and I can send you some info)

    Just out of interest what types of foods does she get a problem with aside from gluten?

    Steve

  • Hi there,

    I have celiac disease and Hashimoto's and honestly find the Hashimoto's isn't a big problem. I was diagnosed at 14 (so a similar age to your daughter) and the only tricky thing in the beginning was remembering to take the medication. I have been on thyroxine for 12 years and I'm doing great. My antibodies have reduced a bit but are still there and every now and then my levels get out of whack and so I have to change the dose, but we're talking maybe once every 2 or 3 years. I also find that changes in weight affect the dosage too. It's honestly not that bad, although I'd be pushing for her to go on thyroxine if I was you - it's naturally produced by the thyroid so this just replaces it. The best thing is her friends won't ever know about it unless she wants them to. I basically monitor myself these days, have regular blood tests and know the symptoms of an underactive and overactive thyroid like the back of my hand so I know if I'm taking too much or too little. It's way less trouble than celiac disease or type 1 but its a bummer she's been lumbered with all 3 :(

    Mel

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