Gluten Withdrawal : I know I've asked... - Gluten Free Guerr...

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Gluten Withdrawal

I know I've asked this question before about gluten withdrawal but I'm still getting symptoms after giving up gluten and yeast around 24 July, I thought I'd be improving by now?

Anyone on here that got symptoms still a few weeks after giving up?

Thank you.

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Hi Alicia, I am sorry that you are still struggling with this, here's a couple of links about gluten withdrawal, one interesting comment is changing from a gluten based diet to being gluten free. is it affects the gut flora which makes a lot of sense.

Please see:

mkfa.info/blog/what-are-glu...

nutritionaltherapy.com/the-...

I hope that you start to feel better soon as you've been through a lot. 😊

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Thank you so much Jerry, I've looked at the internet quite a bit and couldn't find anything so thank you.

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Have you gone dairy free as well? The casein protein in dairy is very similar to gluten.

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Yes I have as I became a Vegan last year.

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Has your vitamin B12 been tested? 10% of the population exhibits neurological symptoms from blood levels under 400 pg/ml (ng/L).

Gut issues could be vagus nerve damage issues.

Do you supplement with B12?

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I've not been tested for B12 but I take a Vegan multivitamin which has B12 in it. I did used to take it in it's own but now I'm on the multivitamins there's no need.

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Hey Alicia, sorry you are having such a bad time. I went GF in March this year, and while I did feel better after a couple weeks, by May I started having and am still having quite a lot of lower intestinal pain, fatigue etc. Although I have a supportive GP who is testing me for everything, I'm given to understand it can take up to 2 years for your stomach to heal. Plus your bowel has to get used to behaving differently, etc. I find peppermint and licorice and ginger infusions all help, as does the usual balanced diet stuff. Solidarity and look after yourself.

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Thank you for your reply Gloria. I did have about a week where I thought 'this is it' but yesterday I don't know what happened as I felt awful, I felt very nauseous and had diarrhoea. I'm feeling a lot better today and have to say that I did eat a little sourdough bread today. Quite a few people have said to me that there is no such thing as gluten withdrawal and you should start to feel better within a couple of weeks but that it takes 6 months for the gluten to exit your system. Thank you for mentioning the teas, I do have a 3 ginger tea by Pukka and have to say that's my 'go to' tea, it does help a little.

I am thinking that I felt so poorly because I had cauliflower for 3 days on the trot and it's a 'high fodmap' food (I also have IBS) so I think that may have been the culprit. I'll be going on holiday soon and when I come back I will be going on the Low Fodmap diet, it's an elimination diet, to find out what foods I react to.

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ooof that sounds like a lot! good luck !

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Thank you Gloria. It isn't going to be easy but it's worth it.

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After approximately 2 months on NGF diet, I noticed that my rash was beginning to go into remission.

After approximately 4 months I began waking up after 6-7 hours of sleep, hence adding a few more hours to the day.

During that period my stomach begun working, which was quite annoying. I have constipation. From stools never more than twice a week to sometimes twice a day felt very time consuming. But I felt great.

Approximately 7-8 months later (probably due to pollen) I began reacting to things I couldn't connect to gluten, like potassium sorbate. I had just become more and more sensitive to stuff.

9 months on NGF I found out that I had a slightly positive celiac bloodtest, and almost non existent IgE wheat sensitivity.

Approximately 10 months on NGF I found out that I had diamine oxidase deficiency, hence sensitive to lots of food.

It's been a year now.

I don't sleep as much, but am still recovering. I must figure out the DAO deficiency. I reckon I'll be ready for a marathon this winter again.

Give yourself time. It's not a quick fix.

It's devastating to figure it out though, but you're not alone. ❀️

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Thank you for your response and for explaining what's been happening to you. You really are going through it.

I am wondering if it was eating cauliflower 3 days on the trot which is a high fodmap food (I have IBS). I'm going to go on the Low Fodmap Elimination Diet and remove foods and gradually introduce them and that way I should be able to find out what food I am reacting to. Before I had food poisoning I had IBS I could manage with no problem but I'm finding it very difficult now.

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Did you have a true food poisoning, or was that too just you eating something you didn't tolerate? (I get food poisoning from meat)

Yes, try the fodmap.

I think cauliflower can be some kind of sugars too.

Hopefully you'll find your reasons.

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I did, from Rice and I know that's very common. I bought a pot of rice and vegetables to re-heat from the supermarket and heated it up to the point where it was boiling hot, I never underheat. I ate the said pot and that evening I was in agony with tummy pain. The next day during the day I seemed to be fine but later on that day I had diarrhoea constantly and extreme nausea and stayed in the bathroom most of the night. I've had food poisoning before where it's lasted for 2 weeks and that was nausea but no diarrhoea, I was diagnosed with Salmonella that time and that's how the IBS started.

I will definitely be going on the fodmap diet. Cauliflower I know is a high fodmap food so I'm pretty sure I overdid it by eating it 3 days on the trot.

I am really fed up with this now but I can see that you have certainly been through it.

Thank you so much for your reply and support.

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Oh, how awful to have salmonella too πŸ™ˆ.

I'm not through with it, since I have an intolerance for biogenic-amines too. I get food poisoning from tiny amounts of poorly handled food. It can be enough with leftovers the very next day, or a sausage.

Those amines won't die in heat, one can only stop the process by freezing it.

I'm still recovering.

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Yes it was but I've never had food poisoning with what I've cooked myself.

I've never heard of biogenic-amines so had to look it up on the internet and obtained the description below. I'm still a little confused as to what they actually are and what they can do to our system.

'A biogenic amine is a biogenic substance with one or more amine groups. They are basic nitrogenous compounds formed mainly by decarboxylation of amino acids or by amination and transamination of aldehydes and ketones. Biogenic amines are organic bases with low molecular weight and are synthesized by microbial, vegetable and animal metabolisms. In food and beverages they are formed by the enzymes of raw material or are generated by microbial decarboxylation of amino acids.'

I can't even begin to think what you've been and are still going through, I really feel for you. I can imagine that you must freeze a fair amount as do I.

I really hope you recover soon as this has been going on a very long time for you.

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It's essential things, that the body uses to function properly. The most famous one is histamine, which also increases if there's other biogenic amines that needs to be broken down. It's apparently not good to have to much of them πŸ˜‚

It makes me think about diabetes you know, the need of glucose but inability to metabolize it properly.

This one lists quite a few of the symptoms.

biologixcenter.com/allergie...

Others are putrescin and such.

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Thank you and I understand what you are saying particularly as you've given the example of diabetes, very helpful.

Thank you also for the link which I'm going to have a look at now.

I really do hope you are better very soon as you've certainly been through the mill so to speak.

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I had withdrawal symptoms for a month and wheat cravings for almost a year.

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Thank you for letting me know, that's a long time for wheat cravings.

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Keep in mind; addiction is what it is. I was an alcoholic for years. I stopped drinking in 1975, but there are times when I so want a drink and that is over 40 years ago.

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Hey well done to you, that's awesome.

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Ah, .....thank you very much. That is very sweet of you to say.

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You are welcome, you must be so proud of yourself :)

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