Gastrocopy: Hi I have coeliacs disease... - Gluten Free Guerr...

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Gastrocopy

Tiredmum75 profile image
6 Replies

Hi I have coeliacs disease my son has had symptoms and needs a gastrocopy for a different issue should I ask them to test for coeliacs as his blood test last year was negetive and he does react to gluten his fifteen and has autism and schizophrenia as well

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Tiredmum75
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researcherUK profile image
researcherUK

Definitely, ask for a test! There is a genetical link as well as symptoms. Autism is associated with Celiac's and hypo's mums.

Even if the tests came back negative, he needs to be on a gluten-free diet as often Celiac's is not confirmed until it is full blown and intestinal villi have been wiped out. This may take 15-20 years in certain cases.

Tiredmum75 profile image
Tiredmum75 in reply toresearcherUK

Thank you does he have to go back on gluten before the test

researcherUK profile image
researcherUK in reply toTiredmum75

Going GF is usually done after the tests are all completed! Best to check with his doctor!

Tiredmum75 profile image
Tiredmum75 in reply toresearcherUK

Ok will do thanks again

Rmichelle profile image
Rmichelle

I hope they do😊 i asked this prior to my endoscopy(for a different issue) and they said no because it has to be referred by a gp on a seperate referral and the fact that being it is a biopsy a consultant would need to do it as normal endoscopies or gastros are usually nurse led-so i ended up having bloody 2 procedures-could have saved nhs some cash there. Good luck.x😊😊

Tiredmum75 profile image
Tiredmum75 in reply toRmichelle

Thanks I appreciate your reply

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