Any GF people also have histamine problems?

Hey guys, I gotta admit I feel pretty out of place on this forum. I'm Gluten Free, but tested for celiac 3 times and came out negative. However I get instant reactions from gluten. The kicker is gluten is only one of many things I react to. I have low DAO enzyme which makes me histamine intolerant. Which means I react to tomatoes, avocados, bananas, dairy, any food that is fermented or aged, anything preserved, any alchohol (this is a tiny fraction of the list). I'm at a point where all I can stomach is one brand of GF pasta with a little salt on top, and the occasional frozen fish from also a specific brand. I'm on so many supplements because of the lack of nutrition and it's only getting worse.

I know I'm in the wrong forum, but is there anyone out there in the same boat as me? I'm struggling to find a way to eat. My reactions cause UC and inflammation of my duodenum, also i have Hashimoto's and anytime I have a digestive crisis my Hashimoto's gets worse, last crisis lasted 2 weeks and my Hashimoto's antibodies doubled.

So long shot in the dark, any help guys? Can someone point me to the right forum? Or something? I'm desperate...

12 Replies

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  • Hi dang, this has come up before on here so please don't worry about being on the wrong forum, here's a link to previous posts:

    healthunlocked.com/search/h...

    There are also posts about foods in the nightshade family like tomatoes and egg plants which also cause problems for some.

    As you're on a gf diet you should not feel out of place on here whatever your reason as we are gf on here. It sounds pretty grim to me all the foods that you have to avoid and if you want to search the archives just use the search box top right of the home page.

    Now getting on the wrong train well that is a problem LOL...

  • Thanks for the resources Jerry, I'll read through these posts. Good to hear that there is some information that I can find in this forum! I will do my research here now before asking any specific questions.

    Cheers and thanks again!

  • Your post interested me as we used to have a member who had formaldehyde allergy and he took anti histamines, so here's a link to some of his posts:

    healthunlocked.com/search/f...

    He had a big issue with Hydroxypropylmethylcellulose which used in many gf foods.

  • I'll look more into this formaldehyde allergy but I think it's unrelated to me. I can't take any preservatives and what foods I buy I make sure I can pronounce the ingredients. I was eating green pea pasta (100% organic no extra ingredients) and also a red lentil pasta (also 100%) and I noticed my reactions getting worse. Then I found out later that people with Histamine intolerance react to those foods, the list is so long it's so hard to remember it all, and my DAO enzyme is so incredibly low that it didn't even read on the blood test, there was no measurement, so my body can't handle even small amounts of histamine. I can eat Barilla brand pasta no problem, it's corn, rice and water, with one emulgamator. So rice and corn (as long as it's not canned) are safe, so are potatoes. I tried eating chicken last week and have had heartburn since then, I get muscle twitching too as a reaction and that hasn't gone away for a few weeks now, when I'm doing well it doesn't happen.

    Just thought I'd put his out there in case you came up with another link, you seem to be a good source of info! :)

  • Perhaps have a look at The Autoimmune Protocol? Food cycling?

  • What is Food Cycling? I was on the AIP diet (still loosely am) unfortunately the AIP diet includes a lot of foods high in histamine, and before I got diagnosed with histamine intolerance I did very poorly on AIP.

  • Food cycling or food rotation can be helpful for some people, but it sounds as though your allergies may be too severe for it to be an option.

    food-allergy.org/rotation.html

    I hope your nutritionist can help you. I wonder if there any way you can increase/ supplement your DOA enzyme.

  • Thanks for the link I'll read about it. From what I've read and been told by doctors it's not possible to increase DAO enzyme. There is a DAO supplement that can be taken before each meal, I'm currently looking into it. It's a little expensive but I'm hoping that a mix of low histamine diet with the occasional DAO supplement might be a possible option.

    The other option is anti-histamines which I currently take every day now, but it doesn't actually remove histamine from your body, and it still doesn't seem to 100% relieve the symptoms.

    Thanks again for the info, I have an appointment with my nutritionist on Monday, so until then I'm researching diets.

  • If you haven't tried it yet, you might want to look at Elaine Gottschall's book 'Breaking the Vicious Cycle' and the Specific Carbohydrate Diet (SCD). There are many people reporting significant improvements with Hashimoto's and Ulcerative Colitis by following it. I follow it, and it is the best thing I have found since being diagnosed with CD in 2012, as just following a 'gluten free' diet doesn't do it for me.

  • I haven't even heard about it, thanks for this! I'll read up and it and bring it up with my Naturopath/nutritionist at my next appointment on Monday.

  • Thanks

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