So, after another week of stringently following GF diet by cutting out all GF breads (suspect the level is still not low enough for me), cooking only from fresh, avoiding anything with additives, emailing Coeliac UK with email questioning their complacency on labeling/20ppm threshold (and getting generic response), and having another slew of response emails from companies stating absolutely no gluten, when clearly products have been cross-contaminated (including Kallo GF rice cakes today), I think I'm beyond p'd off with the dire laws around product labeling in the UK. These products are making people ill, and companies are being given a license to charge 3 times the price for them without even having to test them properly. It stinks. It's time for war!
To add to this, there seems to be a standard of labeling stating product produced in facility that handles e.g. soya, or nuts but no regulation to state wheat/gluten. To use the example of some rice cakes I've been glutened with (photo attached from Tesco website) - they are labeled as 'gluten free', contain only rice and sea salt and label makes no mention of gluten in same factory but does mention soy, dairy and sesame as a risk for allergen contamination. Completely overlook mentioning wheat products produced in the same factory. The rules around this are entirely screwed up. More people have an issue with gluten - yes, it's not going to kill you on the spot, but it's going to be death by a thousand paper cuts until your body gives up from constant glutening and inability to repair properly.
There is also transgression between what Tesco post on their website about this product (the attached image) and what the actual product has on its label. So Tesco states 'Coeliac Friendly', but the packaging on the product simply states gluten free and also mentions the sesame and the dairy, whereas Tesco just mentions just soya as additional allergen risk. If I was sesame seed allergic (as that awful story recently regarding the young girl and Pret involved), and trusted Tesco dietary advice on this without reading the back of the label I'd be in big trouble.
Just seems such an issue across the board for all allergens.
I'm considering putting a petition on petition.parliament.uk/ to have the labeling issue debated/addressed for gluten. It needs 10,000 signatures for gov to respond, and a lot more for it to be debated. I have serious doubts there are a critical mass of effected people to reach that number, but wondering if anyone had any thoughts on this or endeavoured anything similar?