Gluten Free Guerrillas

Symptoms of gluten intolerance

Hi guys

I hope you are well.

I have a query regarding the symptoms of gluten intolerance. I was told by my doctor some years ago that I have IBS but after no joy in easing the symptoms, I have been told to consider the possibility of gluten intolerance. My doctor won't send me for tests so it is very much a case of self diagnosis.

I have tried a gluten free diet and have seen a slight improvement, but I would like to be sure.

I become very tired very quickly, and feel like I have no energy most of the time. When I eat, my tummy bloats almost instantly and is very uncomfortable. I also have joint pain and restlessness of my arms and legs (although that may be related, I don't know).

I would like to get to the heart of the problem as it is making life miserable.

Any advice guys? Xx

3 Replies

Hi Rachael - sorry to hear you are suffering. I have just been diagnosed with Coeliac Disease after suffering for years with pain, bloating and diarrhoea which my doctor incorrectly put down to another condition that I have. I got worse and worse and in desperation tried removing gluten from my diet. I felt much better so I went back to my GP and told him. He then sent me for a simple blood test which showed I had antibodies indicating I was reacting to gluten. Then I had to eat gluten for a few weeks before having a biopsy taken to see whether I was gluten intolerant or whether I had Coeliac Disease.

You may not be coeliac but you should be tested for it because it can seriously harm you to leave it untreated. CD is also under-reported and the Coeliac Organisation are trying to publicise this so that people with CD are found and treated. The treatment is being strictly gluten free with support of a dietitian and regular blood tests and medical check ups.

I think you should go back to your doctor, tell him you are no better and ask for a blood test to check for antibodies.

Good luck and let us know how you get on. Diane


Each person's combination of indicators to gluten intolerance are unique. Your GP will look at common symptoms. Ask a dietician for help, through your GP?

Elimination diet is an extreme but effective way of finding which food is causing problems. Start with safe foods, then add suspects.


The Immune System Recovery Plan is a great book with a workbook included. It should help you to work out your good intolerance. I'm half way through.

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