Choliac

[Lulu2011]

Hi . I was tested for choliac in Dec 2015 . Came back negative.? so I thought I would be ok with bread ect again . Ate bread for a couple of days recently and I feel so ill with all the symptoms I had before I took all wheat products out of my diet . Am reluctant to go back to the doctors as I don't know how I can be helped .?

[Fruitandnutcase]

To be honest I would stay off bread / gluten - if you felt better not eating it why take the chance?

[Regalbirdy]

Hi

Were you gluten-free when you had the test? If so, it may have caused the negative result.

No gluten in the diet = no antibodies to gluten.

If you removed gluten out of the diet after the test was done, then you may have a different form of gluten sensitivity.

[Lulu2011 in reply to Regalbirdy]

Yes I told the doctor this

[Fruitandnutcase in reply to Lulu2011]

You'd think he would have realised you wouldn't get a good result if you weren't eating any gluten

[Lulu2011]

Thanks for your comments .

[Lulu2011]

Will go back to docs and tell him what has happened .

[Patricia2015]

Gluten allergy can only be proved 100% definitely by a biopt via gastroscopy not by blood. If you had a blood test that result is not conclusive.

I've had a gastroscopy and the result was negative however I'm very sensitive for gluten especially for wheat with my underlying conditions (a.o. Crohn like ileitis and Lupus like connective tissue disease). Therefore I stay away from gluten.

I would advise you this too if you got sick after eating (wheat) bread.

[Thurgolady]

Hi Lulu, you probably had the bog standard coeliac blood tests, rather than the more refined tests they can now do. I agree with what others have said that if eating gluten/wheat makes you ill then stop eating it even without a diagnosis, though as you've been eating it now would be a good time to continue and to have the tests done again to try to get an official diagnosis if possible.

[Lulu2011]

Thank you .

[angelias]

Hi Lulu, it really seems incredible but some doctors just don't know and they misadvised patiehts as a consequence. In my case my blood tests were positive and despite knowing I was going to have an endoscopy two different doctors at the same practice told me to stop eating gluten.

[Lulu2011]

I know it's all confusing . I will go back to the doctor again thanks

[lo2748]

I also had a test for choliac,it came back negative,i stopped eating any thing that had gluten in it, and now i feel so well cannot beleive how well i feel.