Hi, I have a borderline partial IgA deficiency. Because of this, I asked my doctor to be retested for coeliac disease using the IgG tests rather than the IgA, as recommended by the Coeliac society, and the NICE guidelines, and, and, and...
After a BIG fight, and his consultation with a biochemist who said I didn't need it, my doctor agreed to retest me with the IgG test. That was six weeks ago. Six weeks later, today, the test hasn't come through and my doc assumes that they never did it.
It turns out there is no place on the bloods form to order the test. He just put it on as a note in the little box for the 'extra details/comments' that is provided. We retook bloods and this time he says he has put it on the form (where?) and in the box again but when I said, "Well, we'll get it this time" all he could answer was "Well, I've done everything I can" which I found far from reassuring.
My question is this, is there anyone here who suffers from IgA deficiency and had to have an IgG test? How did you get your doc or the labs to do this efficiently, especially if there isn't actually a place to order it on the form?
I still can't believe that there is no way to order it and the slap-happy way this is being handled. Anyone got any suggestions as to how to make this happen? I'm in Scotland, by the way, so rules can be a little different.