Gluten Free Guerrillas
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Does anyone have these symptoms if they have Gluten

- bumpy skin on arms, top of chest, back of thighs?

- itching

- torso temp very hot / sweating

- stiff feeling in joint in arms, back of knees etc

Sx

11 Replies
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Hi Silvers,

I have some of the same symptoms, the sweating is my first sign of being glutened. I think we all have very differing symptoms. Mine include persistent conjunctivitis, sinusitis, sweating, mouth ulcers and a permanently sore tongue as well as the usual nausea/bloating/diarrhoea. I also have pain and stiffness, but as I have RA it's normal for me. Throw in insomnia, exhaustion and anaemia and you've got a party!! What a delight this disease is ;-)

Best wishes to you.

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Hi Silvers, aye, I have Dermatitis Herpetiformis and all those symptoms sound familiar to me. Along with the mouth ulcers, bloating, issues going to the loo, night sweats, problems sleeping, etc etc. I don't necessarily get them all at the same time, or even all of them each time I'm glutened... It's a one-day-at-a-time battle! Keep finding new things that set me off... Good luck with your own journey!

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Yes, I too get a lot of itching and lumpy skin on my arms. I have osteoporosis so pain in my limbs is just normal for me. I do exercise and weight bearing exercises which helps, Like other replies, the symptoms come out of the blue. I have weeks when I feel fine but if I consume anything with gluten, it sets off what I have described.

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Thanks so much for your replies. I did miss out quite a few like bloating and toilet issues. I have an underactive thyroid and also autoimmune liver issues..... so quite complicated!! I am going to try and go on a raw food diet but it is difficult in this cold weather...... maybe I should move somewhere sunny lol. Had appoint with GP and pointed out the following coeliac.org.uk/coeliac-dise... which mentions tthyroid and liver issues so managed to get test done today. Thanks again for replies. Sx

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Afternoon

Well I received one of my tests back ........ it is the test to see if you have a protein missing I think and it came back negative. Still waiting for the coeliac test to come back which should be Mon or Tuesday..... x

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So test came back for coeliac as negative at 0.5 and I am sure GP said anything over 7 means you have coealic. I did ask if I could be gluten intolerant as ate bread today and have been to toilet a number of times (sorry TMI). She said I could be but this would not show up in any test. So thyroid high TSH at over 16 and Vitamin D slightly on low side at 45!! x

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Hi Silvers, well in one sense this is good news but there is still a lack of diagnosis so I'd check out Lupus (SLE) please see:

nhs.uk/Conditions/Lupus/Pag...

There are articles about the connection as they are both autoimmune disorders and this may interest you:

healthunlocked.com/lupusuk/...

I think the link between under active thyroid is also interesting and at the end of the day at least you know that a gluten free diet works for you so regardless of a formal diagnosis is worth pursuing to help you recover.

So good luck and I hope that you get a proper diagnosis soon and start to feel better.

Jerry

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Thanks Jerry

I have had a look and wow some people have so many autoimmune issues....... as they say if you have one or are more likely to get more...... I also have autoimmune liver disease called Primary Biliary Cirrhosis........ so quite a number of symptoms crossover with underactive thyroid. I resigned from my job this week and finish end of Feb and going to take time out and look at diet and exercise and then start looking for a fab, exciting job! Sx

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This sounds like dermatitis herpetiformis, which is caused by gluten. It was not until I had these symptoms that I had a biopsy, which confirmed the diagnosis

I was then tested positively for coeliac disease.

Since I went on a gluten free diet I have had none of the symptoms you describe

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Hi Bluebell234

Thanks for your reply. Both blood tests for coeliac came back negative. They would only do and endoscope / biopsy if one or both came back positive. I mentioned in an earlier post that I am going to take time out from working and go gluten and hopefully dairy free and see if that makes a difference. Thanks for your reply. Sx

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Oh me everytime I eat and at other times I am sweating and hate the musty smell. Could food be causing this? x

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