Has anyone had my outcome of radiation - Glioblastoma Support

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Has anyone had my outcome of radiation

Denni60 profile image
12 Replies

After radiotherapy my MRI showed as though tu.our has shrunk. But now have aanother white blob which is 1cm

Waiting for another MRI because it could be irritation from radiation or cancer

I feel alright been on stro.ger chemo for a week and having 3 weeks rest

Today I am going swimming l do this twice a week keeping positive and have a new food plan. Actually looking well feeling good!

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Denni60 profile image
Denni60
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12 Replies
Fisherman67 profile image
Fisherman67

Hi Denni

I finished radio/chemotherapy for a GBM in April last year. The first and second scans afterwards showed a small circular “anomaly” which didn’t grow or change but it had completely vanished by the 3rd scan (7 months after the radio/chemo and just before completing the 6 chemo cycles). Hopefully yours will be similar! John.

Denni60 profile image
Denni60 in reply to Fisherman67

Thank you for giving me some hope I am having an MRI on the 27th so beginning of march hopefully we should have some answers fingers all crossed x

Denni60 profile image
Denni60 in reply to Fisherman67

H, I wanted to tell you that my MRI results of the tumour is growing slowly. Since sept after having 80% tumour removed. It has grown at 1.5cm. Which I think is very good. If I can maintain this I will be happy and hopeful.

Fisherman67 profile image
Fisherman67 in reply to Denni60

I’m pleased to hear you’re comfortable with the results. Keep positive and I wish you all the best.

BobbyD123 profile image
BobbyD123

Hi Denni60, sorry to read about another 'blob' on the last scan.

I have same situation.

Completed cycle 1 of radio/chemo then scan showed another white blob in another part of my brain. Very distressing as it has come from nowhere. Previous scans prior to radio/chemo showed only the original tumour that was resected last December.

I am now on Lomustine (6week cycle) to see if that can slow progression.

Please let me know how you get on and any advice you can give from your own experience?

Denni60 profile image
Denni60 in reply to BobbyD123

Hi Bobby. After I finished radiotherapy this white mark showed up on the MRI. I know it was about 1cm. It has grown now at 1.5cm. The oncologist said it's slow growing. So they suggested two months of Chemo. They want to do another MRI after this months Chemo. Also they want to check the blood supply to my brain. They said they may put me o stronger Chemo. So really I should possibly know in May. I must say I do feel at times when moving around. But have changed life style. I go to Kew gardens for walking exercise and swim 16 lengths once a week. Anything to get me out and about everyone keeps saying how good I look. It's quite hard really to compare yourself to other cases. I do have troublesome pain in my right eye. And it streams tears all the time. Have had this since the tumour was diagnosed. The oncologist does not think it related. But I think it is. Bobby I will let you know. As I go along on my path of health.

BobbyD123 profile image
BobbyD123 in reply to Denni60

Hi Denni. Thanks for replying.

What chemo are you in now?

I've been out on lomustine.

Denni60 profile image
Denni60 in reply to BobbyD123

Hi I not sure because husband provides them. I start on Monday Chemo I will let you know Bobby.

Denni60 profile image
Denni60 in reply to Denni60

Just to let youknow I am doing very well. So since finishing chemo. I had an 1cm White mark showing on MR I. I had abother MRI which had shiwn it had grown at 1.5cm. They said slowly growing then this time had MRI. And it is the same has not changed at all. I am tremendously pleased at results, reason I wanted proof in pudding. So i have stopped all sugars and carbs eating very healthy have green teas nuts and went swi.ming yesterday 15th lengths. The oncologist is si proud of me she said carrying on doi g what your doing. How amazing so changed l7fe style I set challenges for my self. So I said if it stabke I eill carryon on with healthy lifestyle.

Denni60 profile image
Denni60

Sometimes I feel unbalanced when walking. But need to keep strong and positive

BobbyD123 profile image
BobbyD123

Thanks. Good fortune with your new chemo.

Denni60 profile image
Denni60 in reply to BobbyD123

Thank you I keep in touch Bobby and also I wish you well too

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