further chemo ?

[Salsann1e]

hello

jut wondered if anyone else is going through further chemo? i had tumour removed june this year then 30 radiotherapy sessions as well as chemo in tablet form. im now having a month off treatment and am waiting to hear when my scans will be. my oncologist has told me i will go back on chemo but higher dosage. i’ve been feeling very tired and not looking forward to chemo again but can’t work out how they can decide to give me more chemo when no scans yet. i keep wondering if i’ll ever be off the treatment so i can feel well. my life has totally changed …. was always very sporty and now can only go little walks. being single makes it worse. anyone else going through same?

[JC59]

Hi there firstly it sounds like you are doing great after 30 rounds of radiotherapy and chemo, my sister sounds a very similar Lady to you she is 62 lived a healthy lifestyle and has GMB4 she also lives alone and is frustrated because she can't drive. My sister had a months rest after radiotherapy and chemo and now takes chemo for 5 days every month and has done for the last six months. It took her a few months to come round from the treatment but she is much better and even managed a few days away last month walking everyday not sure whether its the norm or not I suppose each individual case is different, she is having her first MRI in a couple of weeks since surgery in January 22 she is treated at Coventry. Hope this helps somewhat stay positive and take each day as it comes take care xx

[Tansi75]

Being tired when going through treatment is part of the process, so you should listen to your body and rest/sleep when it tells you to. I have placed some posts on the Brain Tumour Charity's BRIAN APP discussion board, which you will hopefully find useful.

Use your current time to reflect on your life, think of it as being at a cross roads, where you can continue in a different or the same direction you were travelling in prior to your prognosis. I was fit, enjoyed jogging, hiking, playing 5-a-side football every week prior to my illness, but all that is behind be now on the journey I am on. I am not say you need to give up your sport, just take time to return to it, if that is your intention.

I know it will be very tempting to rush back into keeping fit after your treatment, but from my experience, I think that is a mistake. Recovery takes time and is not a race, so please do take the time to rest and recover after your treatment.

Remember you are not alone on the journey you have now started, there are plenty of people on this site and the Brian App who are there to provide advice and guidance when you need it.

Most of all stay positive and keep your brain active, which I do believe is an important part of recovery.

Regarding the tiredness have you made any changes to your diet e.g. cutting out unnecessary sugar, which feeds cancer cells? Also drink a pint of water when taking chemo tablets and if possible take them before going to bed, so you can sleep through any possible side effects.

[Janelizabeth]

l am on cycles of chemo tablets 5 days then 23 days off. Feeling so tired. I am 70

[GT33]

Hiya, I had/have the same treatment, 2 months after the chemo (150g) and radiology, I then have to take 400g of chemo per day for 5 days a month I'm on month 5 so far I have 1 month left. So far its going ok, I'm not back to me, but feel like I am slowly getting there. i have changed my diet though, I now eat very little red meat more veg and take supplements. I am doing ok.

[RMDF]

Hi , Sorry to hear your going thru this, My husband is going thru the same routine, had it removed, radiation and chemo pills, now he's on the 5day a month chemo pills, first round was 300mg, starts 400mg next week, would like to get up to 600mg, by time his 6months of pills are done. he gets an MRI every other month, so far so good Also he is Very Tired, does very little daily, just exhausted, hopefully this will get better. Continue to be positive, stay strong. After the 6months of pills, they'll continue to watch with MRIs.

[Salsann1e]

thank you and hope your husband continues to keep well