Post trabeculectomy help please: I was diagnosed... - Glaucoma UK

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Post trabeculectomy help please

Glyndebourne profile image
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I was diagnosed with advanced glaucoma in June 2024, and as my consultant said I could lose my vision within a year, I had a trabeculectomy on my left eye in September. As my vision is still very blurry in the operated eye, trab surgery on my right eye (which he reckons I have possibly 2-3 years of vision left) has been postponed twice now, and my next review isn't for 3 months. My situation is a bit unusual in that I had eye lasik surgery to correct short-sighted vision in 2016. As a result of this, my corneas are thin and although my eye pressure has lowered to approx. 3, this is not an accurate reading and the consultant has to add on another 7 or 8 for an accurate measurement. As a result of the trab, I also have an undulating retina. I am feeling extremely depressed about it all, and I really want a second opinion. It will be 20 weeks tomorrow since the trab, and although I can't afford to go privately, I feel this is my only option for peace of mind. I wondered if anyone else has had a similar experience, or can recommend a consultant in East Anglia. I live in Suffolk and would really appreciate any thoughts or advice. Thanks for reading.

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Glyndebourne
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pjhl profile image
pjhl

I had a trab 18 months ago and ended up with an undulating retina due to very low pressure Ultimately my pressure fell to zero .

I live a long way from London ( which I think is probably fairly accessible from Suffolk ) but decided that the best place to take a second opinion was undoubtably at Moorfields Private where there is a huge concentration of expertise .This has proved to be a good decision although the travel is irksome and I am still not out of the woods . Moorfields Private lists all consultants by sub-specialism on line and also encourages patients to use the online site Doctify to evaluate them which is very helpful in researching who it is best to see .

Glyndebourne profile image
Glyndebourne in reply topjhl

Thank you so much for your reply. I will definitey look into this. Wishing you all the best with your ongoing recovery.

KieranGlaucomaUK profile image
KieranGlaucomaUKAdministrator

Hello there. After speaking to you on the helpline recently I have followed this up for you and had a chat with my colleagues. We think a second opinion would be a good idea. When you have LASIK surgery, this can affect the corneal thickness as you mentioned, and measuring the intraocular pressure is more complicated due to the thinning of the cornea. If the pressure is too low, this could be causing the undulating retina, resulting in poor vision. If this is confirmed, the pressure in the eye needs to be brought back up slightly, which will help to straighten the retina and should allow your vision to improve.

Glyndebourne profile image
Glyndebourne

Thank you so much Kieran. Actually I have been very busy looking into finding someone for a second opinion, and have an appointment booked for Tuesday 4th February 🤞🤞🤞

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