Idiopathic Neuropathy

[Twitchen]

For the past couple of months this has been getting far worse. Has now progressed from feet, up both legs to thighs and quite often in my hands and my face. I just feel totally unwell with it and don't know what to do as I am really struggling at work. Sometimes I feel off balance when standing and this often necessitates a hasty trip to the toilet (bowels, not bladder) and also nausea.

Just wondered if anyone else gets these strange sensations in the face and around the lips, it is very unnerving. I had one MRI scan in 2014, but nothing abnormal was discovered.

[galesr]

Oh yes all of the above. This is a terrible condition with no cure. I totally understand what you are saying. I went to rehab for balance and it helped a lot. They even taught me how to get from a fall as I was falling so much. Hang in there.

[Twitchen in reply to galesr]

Thank you for replying, good to hear that rehab helped you.

[Hidden in reply to Twitchen]

I have watched a few Utube videos about balance exercises & techniques on how to get up after a fall. I felt they were useful. I experience fewer falls since l use my cane or walker.

[Valerie58]

Hi,I have every sympathy. 5 years ago I had horrific pins and needles in my legs which felt as if it was spreading up my legs. I also had it in my scalp. My Mri's showed nothing. However I would tell your doctor it is now in your face. I also felt dizzy and couldn't have walked if I hadn't known how.

I am now better apart from some pins and needles in my toes.

My recovery started by being referred to hospital physiotherapy for a separate back problem. She told me I had muscle wasting and that I should join a gymn which had good supervision not to do cardio but to build muscle. In fact they even offered me 12 weeks free on the nhs. I actually picked a private gymn nearer home. This definitely helped. I find if I stop doing it the pains return.

The next was I saw a video on You tube. It said that even if you only have prediabetes you may get peripheral neuropathy. I have cut out eating bread, pasta, rice. However I do eat more butter beans chick peas etc. I eat a lot from Michael Moseleys recipe books Blood Sugar diet and fast 800.

It may also be worth asking if you have a lot of stress in your life and looking at ways to reduce the stress if possible. My doctor thought my stressful job was contributing at the time.

So my advice would be definitely go back to your doctor

But seperately focus on exercise and diet.

For me the above has effectively got rid of the problem. It is still lurking in that the other day I ate a pineapple and was very ill. However I now walk every day and am very fit.

I also find if you are exercising and eating properly the medical profession do take you more seriously.

Hope the above helps

[Twitchen in reply to Valerie58]

Thank you so much for all of the information and advice. The tingling in my hands and face is intermittent, but is far worse when I am stressed, which is a lot of the time. This is all down to my husband having some bad health issues, which in turn has impacted on my health because I am such a worrier. I really feel that I must do something about my stress, but am not sure what is the best way to go. Have been thinking about paying to go to a hypnotherapist or suchlike. I don't really want drugs and think that GP's are very reluctant to give them out now anyway.

[Valerie58 in reply to Twitchen]

I think going for a walk daily will be good for your health and stress. If you come up with a local route that takes about 40 mins it is something you can do every day. I would still talk to doctor about pins and needles in your face as not very nice. They didnt prescribe anything for me. Just trips to neurology and lots of MRIs.

[Twitchen in reply to Valerie58]

Very little chance of getting referred for an mri scan. It is virtually impossible to see a GP where I live, nearly all phone appointments. Also no continuity whatsoever as it is all locums who don’t know anything about you and don’t seem to read your medical history. I was told that GP’s cannot refer for mri and ct scans, only consultants can do that.