Neuropathy Pain

[tinatluszcz]

Hi am Gill i have perpheral neuropathy and the pain is so bad really dont no what to do , I am tired irratable every thing i do is a task

[marionward5]

I am really suffering from peripheral neuropathy.Doctors don't seem to have anything that would help.It makes me very tired.

[blanbuck in reply to marionward5]

Hi, I am Roy. I have had PN for 19 years, it is almost under control now, every few weeks I do get a bad week. There have been many times when I sat in the kitchen with a sharp carving knife at 3 or 4 am, considering whether or not to amputate one or both feet or just end it all completely.

I also have chronic back pain due to a non-repairable spinal injury, but the pain there is nothing compared to PN. It took the GP I had at the time, six years to be convinced that I had PN. He then grudgingly prescribed Gabapentin, which is ordinarily used for treating Epilepsy. This worked fine for a few months but then had to be stepped up repeatedly until I reached the maximum allowable dose. I am now on Pregabalin, where I go after this drug I don't know, but we'll see.

[P_neuropathy in reply to marionward5]

I have had for 9 years and many times I have wanted to kill myself because of the pain and the mobility issues. I am at 2700 mg Gabapentin and 60 Cymbalta. I have a great wife and kids for support otherwise I wouldn't be hanging around this world.

Hang in their, treatments are improving. Don't drink alcohol, it only makes the drugs ineffective making everything worse.

Anyone using pain pumps or spinal blocks?

I don't think I can take more Gabapentin.

BTW, marijuana helps and this is from someone who has not smoked since college 30 years ago.

[Mmenergy in reply to P_neuropathy]

Yes, marijuana helps, only wish I knew a specific strain to specifically help my condition (Canvas).

[Patsy-Somerset]

I too just been diagnosed with periferal neuropathy-had electro magnetic tests which were inconclusive.I have been in constant pain in back and legs-I can't walk round a supermarket or even go for a walk even using a walking stick. I can't take anything stronger than parcetamol as I take warfarin for AF. I have now been given an appointment for a head scan next month-which I am nervous about as hate my head being enclosed I am claustrophobic=No energy-even walking upstairs at night is an effort as is housework and cooking!!!

Patsy-Somerset

[johnnybu]

Hi tinatluszcz, are you in medical treatment? What did your doctor tell you?