Hello I'm 30 when I was 10 and 13 I was ran over by 2 different cars (neither my fault which is wild)
I had a shattered pelvis and was the youngest child in the Royal in Belfast to have an external facatur holding my pelvis together while I was scrapped out with most of my bones broke
20 years on I have been diagnosed with global pain
Which is when you are so used to pain you will never be out of it
I have given up on the nhs as their tablets never work
Written by
Bonni1
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OMG, I feel for you, I know what it is like to be in chronic pain 24/7 with no relief, and no relief with all of the pain medications, as in time your body just get's used to them.
I suffer from a progressive debilitating disease called Complex Regional Pain Syndrome, and has put me in a wheelchair, I cannot go to discribe the pain, I feel like cutting off my limbs, it's that severe.
Keep pestering the NHS, eventually you may be refered to a Pain Management Clinic, or go to your local A&E Department like I did and spend 6 hours in there, whilst they tried to find a pulse in my legs and feet!
I have now been refered to another Hospital to have a Spinal Cord simulator fitted, as this is my final hope.
Yes, I know exactly what you mean! I had an appointment with my consultant last week, and he saw my feet for the first time in 9 months, he couldn't beleive his eyes! he felt my feet and said that they were ice cold (not surprising as they were purple!) any way I have been referred to have an op, something about a Spinal Cord Stimulator Implant, I been on Fentanyl for ages and it's not doing any good, also lyrica (800mg)
When you decide to chop your leg off let me know and we'll do it together, as I told him that I was going to cut off my legs if nothing was done pretty soon, maybe that's what you have to do to get things moving with the NHS.
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