Seeking Help for a Complex and Undiagnosed Neurological Condition – Please Read

[Hulusi]

Hello everyone,

I’m writing with hope and urgency to share the story of Hamed, a young man suffering from a severe and undiagnosed multisystem illness that began at the age of 13. His condition now involves neurological and autonomic dysfunction, causing progressive vision loss, bladder and GI issues, joint problems, and now even his heart.

Despite years of medical evaluations, no clear diagnosis has been reached, and no effective treatment has been found. His symptoms include signs often seen in functional or autoimmune neurological disorders, but he is still waiting for answers.

Hamed urgently needs access to expert diagnostic evaluations and care abroad — especially in Germany, the UK, or the US — but his family cannot afford the costs alone.

We’ve launched a GoFundMe campaign to help support his medical journey:

gofundme.com/f/help-hameds-...

If anyone in this community has insights, knows of clinicians or centers that might help, or any pathways for financial or medical support, we would be truly grateful.

Thank you for taking the time to read. Please consider sharing this message — it could mean a lifeline.

With gratitude