Now its debateable whether FND is a rare (although it does appear in the NORD Directory, yet it is commonly presented to neurology referral).
When researching, I came across this organisation following a reference on FND Hope article and was scrolling through their history. They empower, partner, and advocate for people living with a rare disease in Europe.
This was a link on the current years achievements:
The EURORDIS Membership Meeting in May 2023 unites the community to advance a holistic approach to rare diseases and ensure full societal inclusion for individuals who live with them:
eurordis.org/emm-no-one-lef...
They advocate for individuals living with rare diseases and help enforce policy change.
feeling od drooping water on skin
fnd stroke like symptoms
FND
What was it like leading up to your diagnosis? Did you feel that you were taken seriously?
Alternatives to FND diagnosis - maybe helpful???
