support: My closest sibling eleives... - Functional Neurol...

Functional Neurological Disorder - FND Hope

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Kmtraveler profile image
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My closest sibling eleives that I am struggling more with a past eating disorder rather than symptoms directly related to FND. There is a huge misunderstanding on her part and she has involved my other friends. She was even planning to have an intervention. Boundaries have been crossed. But no one has come to me for the facts.

My husband knows everything that is happening with me and he is the only one that needs to know. I don’t feel like I owe people an explanation for having symptoms of FND. The worst part is I feel like I’m on trial and I have to prove my case. Yes, an eating disorder was something I struggled with for many years, but I feel like it’s used against me as a character flaw rather than an illness that I’ve struggled with like any other disease.

There are unfair assumptions and past experiences related to my eating disorder brought up when I’m trying to communicate my reality and it hurts. I’ve worked hard to overcome my eating disorder. The FND symptoms are involuntary. But even if I were suffering with an eating disorder, I’m treated like a disease that people don’t want to catch. I feel invalidated and alone.

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Kmtraveler profile image
Kmtraveler
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Lady4 profile image
Lady4

I get what your saying and your not alone. Some people think they are helping and not aware they can sometimes make things worse.

You don't need to justify yourself.

My friends will make some flippant comment following something I have shared about my son/our day/what I have learn't and make assumptions and say things that occasionally irritate me or get under my skin but I try not to waste my energy on defending. The fact is they don't understand. If you haven't walked in someone elses footsteps, how could you.

Kmtraveler profile image
Kmtraveler in reply toLady4

Thank you!

This was truly helpful. You’re absolutely right. There is no sense in defending something that is misunderstood if the facts don’t provide enough reason. Good to know I’m not alone and thanks for the validation! :)

Lady4 profile image
Lady4 in reply toKmtraveler

If they are really concerned refer them to the advice for friends and family.

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