Anxiety Meds in the UK

[tinygianthuman]

Morning. I’m over six months in on this FND journey and feel my symptoms are taking another dive. I’ve not been on meds for the last 4 months as I found the SSRI’s the doctor prescribed initially made me feel even worse in my head.

I know that stress / noise / buzz in my brain has always been intense but I’m wondering what other medication I might try / that you’ve found successful in quieting the noise and calming my nervous system.

I do currently have CBD with THC that I can take on occasion, but I don’t find it helps my stammer / speech and would like to see if there’s something else too that might help.

Thanks for any pointers (I know it’s a long shot as everyone is so unique / individual)

[Shimmyaway]

I have not found meds very helpful ..the ssris increased the speed of the shaking, and the higher dose of beta blockers had no effect on it , just slowed me up..so now I just rely on body based therapy ... trauma informed yoga (even though I don;t know what trauma I have had!) and trauma release exercises ( D. Berceli)..these increase the shaking whilst doing them but make you feel looser inside afterwards.

I really hope you find something suitable that will calm down the nervous system.

[tinygianthuman in reply to Shimmyaway]

Thanks so much for replying. I’ll have a look on YouTube for trauma informed yoga, and those releases again - I’ve looked at some before but not really got into it (also not quite sure what trauma I’ve had, but know I’ve always had a very sensitive nervous system).

I also find whenever I try to move / exercise my tremors get worse, but agree that afterwards I sometimes find a little more space…

I hope you have a gentle weekend.

x

[Shimmyaway in reply to tinygianthuman]

I forgot to mention , as regards meds, that I use clonozepan now and again at night, but the drs discourage this. Below is some info about speech and lang difficulties ..mine have changed from stuttering to involuntary antisocial noises, that sometimes accompany the shaking. or happen randomly.

jnnp.bmj.com/content/92/10/...

[tinygianthuman in reply to Shimmyaway]

Thanks so much, I just had a read through and a listen 🙏 My stammer has slowly been getting worse over the last 6 months so it’s interesting to hear that yours has changed to these noises now (before FND I would sometimes find I made the odd strange sound / release but I’m not sure if that’s related). Do you feel that it’s an improvement at all, or simply another / change in symptom?

I’ve not heard of clonozepan before, but I’ll make a note and speak to my doctor about it at my next appointment. Do you take it every night / regularly, or can you use it on those intense days when you know you’re nervous system is especially on edge?

Thanks again! I truly appreciate you sharing your knowledge and experience 🙏

[Shimmyaway]

Hello Tiny,

Clonozepan is the best mate of diazepam, a benzodiazapine ..which can be addictive, so not recommended for regular use. I use it now and again, to ensure better sleep if I have an appt the next day, or if the shaking goes on for too long at night.. It does work. The GP's always ask about usage.The noises are not an improvement, as the stuttering was limited to the phone, but the noises, which can be loud and forceful, come at awkward times, and scare people ! For me they are often , but not always triggered by electronic noises, esp beeps! Chest exercises have reduced the forcefulness. It's good to know this info is of help .. having fnd can be a lonely place.

[tinygianthuman in reply to Shimmyaway]

Thanks again for your insight here… will definitely speak to the doctor about it… and I’m sorry about the noises for you, it can be very difficult being in public / around people I find… so yes, lovely indeed ❤️