misdiagnosed ? : hi. the other day i... - Functional Neurol...

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misdiagnosed ?

Shadow35 profile image
5 Replies

hi. the other day i went in hospital because i had difficulty to lift my leg. in there it get worse and after 30hours it stop. the thing is each time i'm taking two medicationstaking the tylenolthe t with polyéthylène glycol or two days in a row i start getting week, leg heavy , can cough, headache, sometime chest pain and dizzinness. I forgot to tell the doctor that i had something similar before. Can it be fnd if it's happening almost each time with medication ? I took tylenol twice in hospital without thinking that maybe there's polyethylene glycol in it. Never take these at home. I was walking before but have pain in one eye, wasn't able to walk after tylenol and the second time my leg was blue like a corpse. They check for a pulse to be sure. An allergist told me he can check for allergy if it's not an immediat reaction. I made the link after they let me go.

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Shadow35
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Misstea profile image
Misstea

Those are things that should definitely be mentioned to your medical professional. Also, maybe you should not be taking Tylenol. It could be an adverse reaction.

Shadow35 profile image
Shadow35 in reply to Misstea

I stop. But i have late reaction to all medication with the same ingredient in it since the covid vaccin. Had a reaction to the vaccin also but cannot be prove because it's not a typical reaction in normal delay. I wasn't able to walk for few hours after taking an antibiotiques. Just need to know if it can be fnd trigger by some substance. Thanks

Misstea profile image
Misstea in reply to Shadow35

I wouldn't be surprised if a substance triggers the FND but I'm more concerned about the reaction you had to the vaccine and other medication. If you know the names of other medications and their common ingredients, then maybe you can see if you're allergic to one of those ingredients. I'm sorry if I sound redundant.

Fnd_kiwi profile image
Fnd_kiwi in reply to Shadow35

i had an advrerse reaction to iron infusion and now i react to allsorts too. my balance issues started from there ,

Shadow35 profile image
Shadow35

After almost two year, i had a test for the polyéthylène glycol that was negative so i decided to retest the medication that i used to take before the vaccine. So far so good. Maybe the allergy go away like my allergy to some tree. I'm really happy to be able to take my old antihistamine because Oh my! the others was expensive. After that i gonna try slowly the other medication. But i was so sick after the vaccine for sure it trigger some auto immune desease. I now have urticaria to sun, cold, pressure, and can't exercise like before without trigering fatigue, pain and stifness. Rhumathologist is looking for arthritis, vasculitis, dermato for lupus, other auto immune so i don't really think it's fnd. And the rhumato was really suprise to see it in my file without any testing before. I understand the diagnosis when they try everything but they didn't take into consideration a lot of symptom that can't be cause by fnd. Fnd can't change the color of the skin and create a black spot in my eye like a floater. And for now i have nsaid and it help my fingers, back and neck pain so i'm pretty sure it's going in the right direction. Hope to stop having new symptoms because urticaria to cold and sun is not fun and don't respond to urticaria medication. One the bright side, if they find something this year, it will have take them only 2 years to find the problem. A doctor told me it could take 5 to 7 years.

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