FND: Where can I locate medical... - Functional Neurol...

Functional Neurological Disorder - FND Hope

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FND

Holeintheroof profile image
8 Replies

Where can I locate medical assistance familiar with FND?

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Holeintheroof profile image
Holeintheroof
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8 Replies
Lorinda1 profile image
Lorinda1

Hi there. I’d like to help if I can. Where are you from?

Holeintheroof profile image
Holeintheroof in reply to Lorinda1

Niagara Falls, Canada

Lorinda1 profile image
Lorinda1 in reply to Holeintheroof

I’m sorry. I was able to get help in Los Angeles but don’t know anything about Canada.

Stone86 profile image
Stone86 in reply to Lorinda1

Hey Lori, do you happen to be a fellow Re+active patient?!

Lorinda1 profile image
Lorinda1 in reply to Stone86

Yes! It was so great. I was there aug 8-sept 18 of this year. I live inSan Diego so I stayed in a hotel that whole time. When were you there?

BlueSkies1 profile image
BlueSkies1

Hi there,I live in B.C. I found help by going in the FNDHope website and using their map locator to find practitioners closest to me. No one lives anywhere near me but with Zoom I am getting help. StudioBE Coaching in Victoria is on that map and all of their services are through Zoom-including a support group-I have found them very kind and skilled in their field. They have different packages to purchase and groups. If you are having mobility issues you probably need a physiotherapist who can give you hands-on help with that. Best of luck and best wishes. This is a very hard diagnosis to deal with on so many levels so hang in there!😊

Van604 profile image
Van604

Ask your doctor to refer you to a movement disorders specialist at Toronto Western. They have an FND program there.

Di01 profile image
Di01

Anyone fnd going thru menopause for some reason my hrt was setting off some of my fnd sysmptoms :( also im having 2nd doubts that ive been given the wrong diagnosis my neurologist said its fnd but i think its ms all the neurologist gave me was a brain scan and that was went in his office and he just goes its fnd nothing else sent me home follow up in like 4 month phone call im sure he should have done more test feels like im neva going to be well on the edge everyday i thought fnd was flare up thing not every day :( coping with some much i aint been happy in 18 months and i dont feel love i can put up with my pain but this head of mine is horrible im drained i have 0 confidenece that i'l ever feel normal again

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