HELP I LOOSING MY MIND

[DriedupFlowers]

I need someone to direct me in getting help.

The doctors I've seen keep saying they know nothing about it and try this site.

[Jofisher]

Get a referral to an FND specialist I see Professor Edwards in St George’s Tooting in London apologies I don’t know where you are but there are other FND specialists out there and they have special inpatient facility if they feel you require it as well. Good Luck we all know how desperate and despairing you can become with this condition

[Lorinda1]

Hi, I want to offer my support even though I don’t know what’s available in Canada. I’ve talked to other ppl in Canada and they are in the same boat you are.

[cocoferraro]

Hello my lovely,Please book an appt with your doctor and demand tests,

Please stay strong,

Your doc is the first person, you must demand referals or tests...please,

Dont give in,,,,

Much luvx

[BlueSkies1]

Hi there!I live in B.C. and found all of my own help as my medical community did not know how to help either! I will attempt to tell you what I have learned….with your own research you will soon know more than most medical professionals! I know that you may not have the energy or ability to do a lot of your own research…just squeeze a bit in when you can.😊

I live in Prince George, a smaller city, so all the help I am receiving is from Calgary and Victoria. I know that the sooner we receive help the better our prognosis, so I have sought out private services. If you go on the FNDHope website and use their map locator of resources, all of the practitioners who live near you come up and then you can contact them. (Such as studioBECoaching in Victoria-two very kind women who have an extensive history in neurology and FND. All services are offered through Zoom and much more affordable than most private practitioners).

Depending on where you live, different free health care resources will be available (or not!) for n your area. Make sure they know about FND! It is such a tricky diagnosis to work with. People who make up treatment teams seem to be psychiatrists and psychologists; OTs; and physiotherapists (depending on your symptoms). OTs can be excellent as they understand mental health issues as well as energy levels and daily functioning. Physiotherapists are important for mobility issues.

Various universities and hospitals across the country specialize in FND through their neurology or neuropsychiatric/psychiatric departments…. but they may have long waits. Call them up in person and ask about their programs, experience with FND, and wait time - then you can ask your Dr. for a referral to the program. (I found I had to find the resources myself and ask for the referral to them).

We use private health care to pay for a neuropsychologist whom I see over Zoom. This is very expensive-I know not always an option-but I think it is worth the money if that option is possible for you so that you get started on treatment sooner.

Most of the counselling I am doing is around mindfulness/meditation practices and more cognitive therapies, although some people seem to benefit from more talk therapy around underlying emotional issues. I think once you get working with someone you can scale it back a bit as you begin to heal (I am!!😀) and do a lot of the work on your own.

I am wishing you so much luck with this. As I feel I am on the road to recovery with a bit more energy, please feel free to ask more questions.😊. Take care and all the best with this rotten illness. (Although I am beginning to see that it is also going to change my life for the better, too).🤗

[Di01]

Sick of waiting on people i cant get know where fast neurologtist did one thing mri brain scan says fnd dr tells me talk about stuff probles still frustating me daily so that wast of time been in 4 lots off meds they all do the same to me make me feel worse after the 4 day now im lossing it my memory is rank asked 4 times what day it is went in cupboard but i dunno why then opened fridge for nothing like im going out of my mind sat looking at 4 walls my body doesnt want to move i feel like i cant win i cant go for a walk my legs r heavy and tired my body just in no mans land where everything just seems impossible to do the meds well size effects r bad how can i feel better with fnd if meds just make me feel horrible eith there side effect like im going to dye on them and thats just low dose dunno why i have such a bad time with med i'm also going thru the menopause anyone else have med issues ?