Migraine induced Motor FND??

[Fibroid09]

Hello everyone.

I have been knocked for six.. Last summer I developed pressure in my head when bending.. Excruciating headaches.. ( Trouble seeing a GP.. thrown some co-codamol.) Over the Autumn became more unwell.. Fatigue and ear infections plus worsening of headaches..

Noticing stiff legs.. more so in the morning. Also burning pain in the bottom of my feet when standing from sitting.. tingling and burning pain in limbs.. etc.. saw GP….B12 deficiency.. Inflammation detected.

I pushed through.. mind over matter.. haha..

Please never try this.. my body was in a free fall.. until I could no longer function due to head pain.. fatigue.. insomnia.. One March morning I could not lift my feet to walk properly…

Was examined by my GP and told I could have a brain tumour or ms..

At this point I just want the pain to stop and to sleep. I had an mri of my brain which was normal.

Hooray.. but I’m still unable to walk.. then after the clear mri.. my speech goes too. Strained speech.. and mind will go blank.. I repeat what the person is saying .. I feel like someone is sitting on my chest and my mind does not seem clear.

Anyhow.. my muscles are wasting and I had to go private as I had only got 2 phone calls from the nhs neurologist .. never seen one in 5 months until I went Private.

Long story short.. i got given migraine tablets given and told it would clean my brain up.. by the NHS neurologist.

I think my brain went into limp mode.. my legs were giving me warnings signs..

I now use a walking aid and can’t manage to walk much at all.

My balance declined over the months..

My story may not be concise.. forgive me.. not the person I was.

I’m awaiting further tests after seeing a Private neurologist that examined me.

If it is FND then it is a story for others.. if you are unwell... physical or mental get proper help.. don’t try to push through like some super human.. it can backfire.

Our brain is responsible for mental and physical.. any interruption and it can go into limp mode.

My own experience leaves me believing FND is not the same as a Conversion disorder.. All my symptoms remain and have progressed.. happily would convert to get my ability to walk properly back.. even put up with the speech issues.

Take care all. X

[Brokendeer]

Hi, I have Motor FND (long term) and for the first 3 yrs was investigated for MS due to similar symptoms. 5 years down the line I got the diagnosis of Motor FND.

I believe there is a connection with either pseudo stroke or severe migraine (which leaves no physical trace on MRI) but I also believe biomechanical deficiencies build up over the years until basically the nervous system reaches `compensation' breaking point and these multiple distress signals overload the Brain - causing FND.

As you have inflammation and severe pain confirmed, you may well find an additional consult with a Rheumatologist might be helpful, pain and inflammation conditions are their speciality (might even be something like Transverse myelitis often missed diagnosis I understand and treatable with antibiotics etc). Also Rheumatologists are more aligned to long term puzzle solving and solution finding than standard Neurologists; who in my experience are keen to diagnose FND so that they can get rid of FND sufferers from their clinic quickly!

Look for the calm in the Storm!

[Fibroid09 in reply to Brokendeer]

Thank you Brokendeer.

I will consider what you advise regarding a Rheumatologist.

If my untreated chronic headaches caused the malfunction it would fit and maybe in time my system will reboot.

I have rested and been positive.. telling myself tomorrow I will be better.

The distraction idea does not work.. so maybe my legs have something else occurring.. time will tell.

Like everyone.. I just want to get up and be able to go.. the independent me back.

[Shelford24 in reply to Fibroid09]

Hope your headaches improve soon. I also had untreated migraines that caused similar problems it took a good 8 months before the pain went. It might be worth seeing a headache specialist, an adjustment to your meds might be needed.

[cocoferraro]

Hi,I am so sorry that you feel so unwell,

reading your text I realise that there are at lot of symptoms that link us all with FND.

(have had it for 9 yrs)

The headaches, from severe pain to a pressure band around head all the time or upon rising.

B12 defficiency, loss of balance, weakness in limbs, tirdness, sight problems, speech problems, tremors, eating problems, sleeping problems, and the list goes on, but from reading all your emails each night, it appears that we are all linked by these things,

so these are all the symptoms of FND-and more!! the list goes on!!

I think that our GPs are trying to deal with FND as best they can(if you have a good gp) but some people dont and get a raw deal. FDN presents so many different physical and mental problems for all of us, but I think there appears to be a link with all of us from reading all your storys.

As time goes on our doctors will keep learning and in the future I think that FDN will be taken as seriously and treated as seriously as any other disease, but unfortunately at the present they are still learning. Its luck that you get good treatment as to where you live and your GP. In the meantime we are the guinepigs,

does this all make sense to you?

I am still so ill with FND but read what everybody writes and am very interested in what you all have to say, I am learning still after 9 years.

Take care Yani09 I wish you all the bestXX