Hello

[MatBridges]

Hey guys and girls, im Mat. O jave been diagnosed with fnd on feb this year after falling and cracking my head open on a corner of a door. Im on here to connect wirh people with the same disorder as myself and how tondeal.with it. Before this happened I was an Arborist and bodybuilder, now im trapped at home and cant do more than 30 mins of light exercise at most. Anways hello and hope to connect with likeminded people

[Brokendeer]

Hi Mat, I consider myself to be an FND veteran now. I have the Motor FND which means my muscles do not respond correctly everytime my brain signals movement, mainly affecting my walking etc.

Now you obviously have been very physically active in your life, what with the tree work and bodybuilding and now you are unable to maintain those levels of fitness. Therefore your body is out of routine and Adrenaline levels will be random and under utilized like before.

You see I strongly believe that Motor FND is down to the brain being unable to switch off the survival response of `Flight, Freeze or Fight' due to some physical event that happened.

This means the Adrenaline that was useful before FND is now being triggered when it should not be triggered and so flooding the compromised FND brain and confusing communication/signals to the body.

Try and pace yourself with activities, emotions and especially between mental or physical tasks with frequent rest breaks and good hydration. Think about keeping that Adrenaline level stable daily would be my advice. You would be surprised at how odd things can trigger a bad attack, like simply watching an action movie for me!

Be kind to yourself, search for the calm in the storm!

[MatBridges in reply to Brokendeer]

Hi Brokendeer.

Thanks for the reply. I try to limit myself and be as calm as possible. I constantly get severe anxiety attacks, usually when out in public, or wet, slippery surfaces.

For me its more affects my speech. Thank you very much for your kind words

[Brokendeer in reply to MatBridges]

Hi Mat, my friend has Speech affected by FND - they found Speech Therapy a great help, but it took about a year for the re-training to kick in!

Anxiety is one of the key problems in FND, if you have not already, give Professor Jon Stone's website a look neurosymptoms.org

You will see how common and different FND sufferers symptoms can be, and you might pick up some tips there too?

Be kind to yourself, search for the calm in the storm!

[Bailey09]

Hi Mat

I've FND now for three half years I suffer with a lot of symptoms with this disorder my anxiety is sky high at the moment plus my depression with this bloody virus at the moment I suffer with anxiety,ocd , fibromyalgia, ibs , eye migraines, depersonalizion, derealization ,balance, dizziness, speech, problems with walking and sleeping ,rls take care and keep safe x

[Brokendeer in reply to Bailey09]

Hi Bailey,

I get visual migraines which I guess are similar to eye migraines, did they ever tell you what might cause them?

Like what the triggers might be to setting them off?

Any ideas would be helpful, thanks.

Be kind to yourself, search for the calm in the storm!

[Bailey09 in reply to Brokendeer]

My neurologist said stress but I've always been like that anyway x

[Ottaw in reply to Brokendeer]

Did you ever had a scan of your eye? And visual Field test? If you have any inflammation behind your eye they should be able to see it. In a meanwhile there are special masks for the eyes you could purchase at the pharmacy, then you place it in the microwave for a second and then place the mask over your eyes it will ease the pain.

[Brokendeer in reply to Ottaw]

Hi Although I have never had an eye scan, I do have a fantastic optician who looks after my eye health. The Visual Migraines are sudden, so maybe a warm eye mask may help at that point in time - always assumed there was nothing I could do but wait for it to pass? Like Bailey, I have always been anxious/stressed and suffered these eye problems, even before FND.

Thanks for your advice though,

Be kind to yourself, search for the calm in the storm!

[Ottaw in reply to Brokendeer]

Happy to help.

[tabey]

Welcome to the clan mat

[MatBridges]

Hello thanks to for being so kind