Gabapentin and involuntary movements.... - Functional Neurol...

Functional Neurological Disorder - FND Hope

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Gabapentin and involuntary movements..... I don't like this

Daesin profile image
4 Replies

So I saw the psych last week and she started me on gabapentin 300 mg tid. I started them on Friday.

I'm experiencing increasing levels of involuntary movements. I had a bad twitch before I met her.... it was what the doctors focused on in the hospital in January. It's what got me this F label.

The medicine is not good... it's making me extremely irritable I haven't slept much in 2 days and I'm twitching so hard that I can barely walk across the room or keep seated in my kitchen chair.

I took the last on at 6 this morning, not thinking, so tired. Popped it right in.

Please, does anybody know how to push it out of my system? I'm waiting back from my primary and the psych.

Thanks

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Daesin profile image
Daesin
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4 Replies
M3rry profile image
M3rry

I had a bad reaction to gabapentin, basically it changed how my mind worked to the point I was terrified. What made it worse was that I was not allowed to stop the drug immediately, I had to titre down (take smaller doses everyday).

Don't worry, what the drug does that is nasty - stops and you'll get back to before you took that first pill. It will just take a bit of time.

Junebeatle profile image
Junebeatle

I’ve heard that medication isn’t a good one, Honestly since you’ve just started you should be fine to just cessate. Remember you & only you know your body (not even a Pharma pushing doc is an expert in that arena)

Good luck! You should return to pre-gabapentin levels quickly since it’s new in your system.

Prosaic_One profile image
Prosaic_One

I've finally finished weaning off Neurontin after 10 years! It's taken me about a year to titre safely (1st attempt caused my worst seizure). The tics & twitchiness are worse now. It gets very painful.

It was one of a few meds that gave me no side effects, which is why my doctors kept it going so long. It simply lost its effectiveness after so many years.

The side effects you're dealing with, I'd suggest simply stopping & follow up w/ your Neurologist later. 300mg is such a low dose your body should expel it rather quickly.

We w/FND I find have lots of chemical sensitivities. If ur meds are making life more painful/dangerous/uncomfortable, they're doing more harm than good. Hopefully your doctors are good listeners but if not, don't be afraid to tell them, "look, I'm not okay feeling like this". Good luck...I'm fighting my own battle w/my insurance company for new course of treatment. Wish you all the best!

Daesin profile image
Daesin

Thank you for your input. Yeah I realized that I'm blessed to be able to step back this quickly. what you say rings true as before the spasms and involuntary jerks would rarely hurt. Not that I wouldn't be so sore at night. Even my PT was impressed by the fact that I wasn't in pain. That has changed over the last couple days and I hope it changes right back around. They said it will be detectable in my system for 48 hours from the last dose so we're less than 24 to go. I'm usually the zebra though. Fingers continue to be crossed.

Blessings to you all.

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