Getting Out Into The World: This is for... - Functional Neurol...

Functional Neurological Disorder - FND Hope

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Getting Out Into The World

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This is for those who have built up fears and anxiety and anyone who is skeptic.

Just recently I had lost my job as a diesel tech because of my neuro symptoms. I had gait problems, leg weakness, the inability to use my feet. Along with stuttering speach and myoclonus jerks and tics.

I had been at home waiting for physical (physio) therapy to help me. It helped in different ways other than physical.

For the time being this busy body had done projects around the house and my garage/shop. Plus work on vehicles were still coming my way. So I had plenty to do.

As I kept going to PT I had gotten worse. Mainly because it was be at home all day and PT. That was it. My daily activity wasn't really filled by outings and work life.

So as I went to PT I had more tics and seizures. There when pushed too hard and at home while resting watching a movie or anything sedentary. I had gone to an animal shelter last year for the same motive, to integrate myself into the work place. There I had done daily functions as a normal worker and my seizures got less. By a couple weeks time I got a job as an auto mechanic. This year I had gotten worse with my body with my mobility.

Being at home with no actual function to society didn't help because my environment was always the same and the routines and rituals were blended together. This brought on boredom, stress, frustration and other items not helpful.

So yesterday I went again for the 1st time this year. The staff had changed but my environment hadn't. For the 1st time in 2 months I experienced new people, I had went around to help others, and I petted the animals.

This brought of course happiness. My stress level was down. I felt more at peace in my body because I have noticable problems. I can't hide it anymore like I used to so being out into the world and just feeling like I can be a contribution lowered my symptoms to a tolerable level. Being in our bodys sucks, but what sucks even worse is looking into the mirror and crying or being angry that we're like this.

Now I look in the mirror and smile with joy and pride that I am somebody and all I had to do is help myself by doing something else other than my routines. I never heard of anyone going home or leaving unhappy from volunteering at a shelter or church have you?

So having a sense of purpose was exactly like I said. Having a sense of purpose is really a type of medication that doesn't take my body problems away but it does let me forget that I'm like this for the rest of my life. Just knowing that is tough but it's even tough to let the devil win by you giving up your spirit due to an illness people don't understand.

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AtMyWitsEnd53 profile image
AtMyWitsEnd53

Thank you for sharing. Your story is very uplifting and inspiring.

Soooooo inspirational! ;0)

AddNothingToIT profile image
AddNothingToIT

Hi Matthew, it’s lovely to read about the animal sanctuary. I would love to be able to do something like that. I have a dog that keeps me company and he is amazing. Recently I started a podcast to have something to do. I’m finding it very therapeutic, it’s great to have some contribution to the outer world. I hope that one day soon I will be able to volunteer somewhere like an animal sanctuary, it would be great. I’d love to work with animals so hopefully I will be able to soon. Best wishes Lucy

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