After what seems like a lifetime of waiting and wrong turns, there are only 2 weeks until my Neurologist appointment. My left leg weakness is allllmost back to normal - I can get 13 single leg calf raises vs 20 on my right (at the worst about 2mo ago it was 3 vs 20) and can finally curl the toes on my left foot. My running and cycling is symmetrical again which is so pleasing! There has been no improvement unfortunately in my pins and needles and pain in my feet - which has an achey/burning quality, overlaid by seemingly random bursts of stabbing/shock-like pricks of lancinating pain. I also get pain from totally innocuous stimuli like the carpet or sheets on my toes. Overall however the level of disability I experience from my symptoms is tiny. I am living life effectively and healthily as usual, albeit with a little more irritation and anxiety.
I am coming to terms with this being a functional disorder however after MUCH research I cannot find any information about effective treatments for sensory symptoms where there is no important motor disability. I don't really need pain medication either because the worst symptom is the pins and needles, and the pain is not very severe and is usually unpredictable. This leaves me feeling like I will never be back to normal. I can't yet accept my symptoms as a 'new normal' either. I hope that my appointment will provide me with some peace of mind to confirm or deny that I have FND and then my heart and mind can start to heal.