Almost 18 years walking alone with no diagnosis to my vocal tic disorder.

[DarkBlackberry]

Good Afternoon to you all.

I am knew here.

This morning I was given hope for my Vocal tic disorder. It was given a name FND. I had given up hope that there would be something that could be done to help my disability in this life, beside the many options of medication.

Then finding you guys, people who get it, who posts that I have read and I see myself reflected in the words is a blessing. That has been one of the hardest thing with living with FND is the isolation. I feel like I can breath and possibly share more in the future and not feel like I have to pretend that its ok when it is not.

Here is a tip that I have found that helps with my pain. Listening to music. It is a way to get through the pain and take my mind someplace else. Hope this helps others.

[tabey]

Dear DarkBlackberry

Your so so right music is a great source of comfort to me . Im sorry your also having a tought time at the moment FND sucks but as you say we can all be open here be ourselves with out being labeled another part of the fruit cake clan

Hugs sent with music we be stronger abd fight off the darkness

Take care

Tabey

[Brokendeer]

Hi I do not have vocal issues, as have Motor FND, but I do have a friend who has prolonged episodes of vocal stuttering which occurs on top of their usual type of FND.

Stress is a massive trigger for vocal FND and this too happens with people with Tourettes Syndrome.

Have you been checked for Tourettes?

Only you can have Tourettes from a young age with incredibly mild symptoms and then later in life (usually a stressful event) can cause the symptoms to escalate. Worth ruling out, as treatment for Tourettes is more specific medication based, where as FND is more Cognitive Behavioural Therapy based.

That said, any vocal disturbance that is affecting your speech (FND, Tourettes, Stroke etc) can be improved with Speech Therapist sessions, my friend went to sessions for 1 year before getting anywhere so it is a long old road - but my friend is mostly okay now.

Look for the calm in the Storm!

[DarkBlackberry in reply to Brokendeer]

I have been checked for Tourettes. This started when I was 18 years old, shortly after I recovered from a bad case of MRSA.

[Hidden]

Hi,

I recently developed motor and vocal tics with a diagnosis of FND, so I can't imagine how difficult it must have been to struggle with it for so long. I'm really happy to hear that you've found some direction!

If you have the resources, I also recommend looking into cognitive behavioral intervention for tics (CBIT), which has helped me to manage tics that kept me from some basic daily activities. I hope you continue to have hope and remember that you're not alone, thank you for sharing!

I'm going to go listen to a playlist I made specifically for bad tics and anxiety haha, push on friend

[DarkBlackberry in reply to Hidden]

My vocal tic affects my whole body so its not just the sound but it also causes my whole body to spam. I hope you are doing well.